The Atypical HUS Foundation

Judy Trynosky
  • Female
  • Boulder, CO
  • United States
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Profile Information

Birthday
April 17
I am an adult aHUS patient.
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
No
My child ( or myself as a patient) is best described as:
Not Tested

Judy Trynosky's Blog

Mimi - per headaches.... I've been diagnosed since Feb 2015, and too had headaches for the first 6 months of treatment after I got my infusion.  I also take daily antibiotics for chronic infections (…

Mimi - per headaches....

I've been diagnosed since Feb 2015, and too had headaches for the first 6 months of treatment after I got my infusion.  I also take daily antibiotics for chronic infections (I take cipro for pseudomonas).  When I first started with the headaches, I took Tramdol before my IV.  After awhile, decreased to the point I no longer need it (about 6 months total).  Do keep in mind, I am 60, so may not apply in your case.  I only had the headaches the day /evening after…

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Posted on July 18, 2016 at 8:40pm — 1 Comment

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At 11:19am on July 4, 2016, Cheryl Biermann said…

Hi, No, will not be going to Denver, Judy.  It is my son, Nathan with aHUS.  Sixteen now, diagnosed at 11 months, transplant with Soliris at age 11.  No rejections so far!  Hope the Denver meeting is good!  

At 10:06pm on July 3, 2016, Jennifer Smidt said…
Hi, I will be attending the Denver Conference. I too will look forward to talking with an adult who has this as well. I hope you're doing well. Jenny
At 9:55pm on July 3, 2016, Walter Lee Powell said…
No, not going to make it to Denver.
At 10:18pm on June 25, 2016, Linda Burke said…

Welcome, we hope you find this site to be a source of information and support.  Please check out our aHUS resource list.  You may want to review the aHUS Bootcamp as a starting point, to get an overview of aHUS or to share with family and friends..

We look forward to your participation on this site.

 
 
 

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