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Justine Schmidt
- Female
- Tacoma, WA
- United States
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Justine Schmidt's Page
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Profile Information
- Birthday
- August 19
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- Yes
- My child ( or myself as a patient) is best described as:
- Factor I (CFI)
Comment Wall (5 comments)
- At 1:21pm on December 10, 2009,
Linda Burke said…
- Hope all is well at your end! We're looking forward to hearing your story when you have a chance. Best wishes, Linda Burke
- At 11:31pm on November 11, 2009,
Linda Burke said…
- Welcome to the interactive website of the Foundation for Children with Atypical HUS, please feel free to explore the Forums and Blogs and add comments or questions. It's interesting that your profile listed both a medical/research link as well as a personal link (similar to both Grace and Joy), so perhaps I should mention that the site is fully searchable. If you look above the cute colored 'Bubble Faces', you'll find a search bar to start looking for your areas of special interest. Feel free to participate often - we look forward to hearing your story.
- At 3:39pm on November 11, 2009,
Sylwia Antkowiak said…
- Hi Justine
welcome to the site. Just noticed Factor I (CFI) and its something that my daughter has as well. Can't wait to hear your story.
- At 11:06pm on November 10, 2009,
Cheryl Biermann said…
- Welcome to the site, Justine! Can't wait to get to know ya'll.
- At 7:03pm on November 10, 2009,
Svetlana Finley said… - Justine welcome to our big family!!!! Can't wait to get to hear your story and get to know your family.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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