Kathy Yates Female Reinbeck, IA United States: Share on Facebook Share Twitter

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Kathy Yates commented on Svetlana Finley's blog post 'What hotel for conference?'

I thought people were staying at Baymont Inn. Was I under the wrong impression? If anyone hears of anything, let me know, cause I would like to stay where everyone else is going to be,

Sep 16, 2011

Kathy Yates commented on Bill Biermann's event '2011 Parent Conference'

Just wanted to know if everyone plans on staying at the Baymond? If so, I will book my registration.

Sep 14, 2011

Kathy Yates and Ethan Ardoin are now friends Sep 9, 2011

Kathy Yates commented on Cheryl Biermann's blog post 'Why updating renal patients is always a challenge'

Am so sorry to hear about this bump. Brandi also had to have a biospy cause of her numbers being to high, ended up being that this is the way that her new kidney operates. I will keep you all in my prayers and just know that nothing ever comes easy…

Sep 7, 2011

Kathy Yates commented on Bill Biermann's blog post 'Cheryl and Nathan's big day'

Congratulations, Congratulations!! Am so happy to hear that everything went well. Nathan's numbers are so awesome...What a wonderful change your lives are going to encounter.

Sep 3, 2011

Kathy Yates commented on Cheryl Biermann's blog post 'Failure of dialysis catheters' tego leads to colorful trip to the hospital'

Oh, how scary. We were fortunate that we never had such issues with Brandi. Am so happy to hear that things are okay. What a strong mom you are, am not so sure I would of been so calm and collected as to answer his questions, the way you did.

Jul 30, 2011

Jaime Lauck and Kathy Yates are now friends Jul 1, 2011

Linda Burke commented on Kathy Yates's blog post 'Been a while...'

Wow - that's not 'bragging' that's sharing the joy and offering hope to others! While it's a bit disheartening to hear of that nasty virus, it sounds like your very capable Iowa team has it covered. Good for you…

Jun 19, 2011

Kathy Yates commented on Dana M Simone's blog post 'Day 4 Transplant Update'

Yes, after Brandi's transplant whenever she was in large groups she had to wear a mask, but it was only for first 2 months post transplant. When we would have company visit our home, we had a large bottle of hand sanitizer at the door for…

Jun 19, 2011

Kathy Yates and Dana M Simone are now friends Jun 19, 2011

Svetlana Finley commented on Kathy Yates's blog post 'Been a while...'

Thanks for update!!! Praying for fast recovery and get back to normal everyday life ;-)

Jun 18, 2011

Dana M Simone commented on Kathy Yates's blog post 'Been a while...'

Praying for Brandi's swift recovery so that she can get back to enjoying the summer and SWIMMING!

Jun 18, 2011

Grace commented on Kathy Yates's blog post 'Been a while...'

Thanks for the update. I hope Brandi shakes off that virus very soon and regains her strength. Wonderful news is welcome, and I hope and pray that Brandi's experience continues that way.

Jun 18, 2011

Cheryl Biermann commented on Kathy Yates's blog post 'Been a while...'

Kathy, I'm sure everyone is as excited as I was to see this post; please let Brandi know she is often prayed for and have good wishes sent for her benefit. Hopefully you will soon see the last of that nasty virus! I bet it was…

Jun 18, 2011

Been a while...

Well, it's been a while since my last post. Let's just say that I didn't want to make myself out to be bragging on how wonderful Brandi has been doing since her tranplant, but wonderful she has been. We are hitting a little over 7 months since her transplant, and things have been going fairly smoothly. About a month ago, she got a bad kidney infection and had to stay in the hospital a week, but has recovered from that nicely. She has been fighting off a nasty virus, that doesn't allow her red…See More

Blog post by Kathy Yates Jun 18, 2011

5 Comments

Kathy Yates commented on Jaime Lauck's blog post 'A New Hope (sorry Star Wars but it was appropriate)'

There is hope, just don't give up! Our daughter, Brandi was transplanted in June,07, lost that transplanted kidney in July,09. It took losing the transplanted kidney to learn that she had AtypicalHUS. If they had known she had this disease she…

Jun 18, 2011

Profile Information

Birthday: January 9

Do you have a friend or family member diagnosed with aHUS?: Yes

Are you medical personnel or an aHUS researcher with an interest in aHUS issues?: No

My child ( or myself as a patient) is best described as:: Tested but Awaiting Results

Kathy Yates's Blog

Been a while...

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Posted on June 17, 2011 at 8:26pm — 5 Comments

Brandi's Update

It has been a little over a month since Brandi's transplant and she is doing well. We haven't had anything major accur since being released from the hospital. We have been making weekly trips to University of Iowa Hospital and Clinics, with one week being a check up with labs and the following week labs and infusion of Soliris. Brandi hasn't had any ill effects from the treatment and seems to tolerate them well. She was going to resume going to school on the 15th, but Dr. Brophy decided in…

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Posted on November 11, 2010 at 3:37pm — 4 Comments

Brandi's Transplant

On Oct. 7, 2010, Brandi had her second transplant. We had lost her first transplant due to AtypicalHUS, at the time she wasn't diagnosised as having HUS until after we lost the transplant. Her own kidney's had been so damaged that they were not able to tell what had happen, with the transplanted one, they were able to do a biospy and discovered the cause. Didn't want to say anything until Brandi was out of the woods, so to speak, but as of this morning she is doing super and we are planning…

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Posted on October 16, 2010 at 12:30pm — 6 Comments

Brandi's Birthday

Today, Brandi turned 12. Oh, how quickly the time flies. If no one new Brandi is a twin, and Brittany doesn't show any signs of having AypicalHUS, which we haven't had her tested yet, but plan on in the future. My babies are growing fast. Brandi has been in good spirits, and things just don't bother her, she takes everything with a smile on her face. Am so thankful for that. That this hasn't changed her personality is a blessing. We are still hopeful to do home dialysis, but she continues to… Continue

Posted on November 10, 2009 at 2:56pm — 4 Comments

Comment Wall (7 comments)

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At 11:29pm on February 8, 2011, Linda Burke said…: Hi Kathy,

Hope that Brandi continues to do fine post-transplant- please update us when you're able.

At 11:13pm on November 5, 2009, Linda Burke said…: Hi Kathy!
Let me know if you need a few more aHUS 'business cards' - hope all is well ! - Best, Linda

At 10:36pm on October 18, 2009, Linda Burke said…: Hi Kathy! I'm glad that I could meet with you and Jim at the Iowa conference - I think that as we share experiences we gain information and insight that help us through this maze we call aHUS. I'm hoping that you'll call on us for a little parent-to parent support - remember that you can choose "Send a Message" if you want to have a private word with someone, too. Sending every best wish for Brandi and you all..... Best wishes, Linda

At 10:03pm on October 18, 2009, Cheryl Biermann said…: Kathy it was so great meeting you and your husband, I hope you went away with a lot more confidence and encouraging information than you had before. Good luck with the dialysis, you'll do great! Keep blogging!

At 10:26pm on October 12, 2009, Linda Burke said…: Hi Kathy,
Looking forward to seeing you at the Iowa conference - hope you've pulled up a copy of the agenda, as I remember you needed the details to plan your attendance. If you hadn't noticed, the agenda is right in the blog section. Lucky you, living so close by! ;D

At 9:08pm on September 8, 2009, Linda Burke said…: Hi Kathy,
Welcome to the interactive website for the Foundation for Children with Atypical HUS. If you look in the Links box on the Home Page, you'll find the Foundation's main informational site at www.atypicalhus.50megs.com . Foundation director Bill Biermann can be contacted through either website, and Bill would have the conference agenda you requested. While it saddens me to hear that your family is dealing with a newly diagnosed aHUS family member, I hope that we can help provide information, resource ideas, and support to you and your family. We look forward to hearing your story, and to your questions and comments as you explore this site. Best wishes, Linda Burke

At 12:27pm on September 8, 2009, Svetlana Finley said…: Welcome to this website !!!

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Welcome to
The Foundation for Children with Atypical HUS

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WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!

The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.

NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.

************************

NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.

Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.

• • • • • • • • • • • •

It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.

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Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com

Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
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