Just up from this new activity box there is a video of Prof. Judith Goodship. Standing next to her is Sean who Tim Goodship referred to in his recent webinar as being a survivor of a family blighted by aHUS and which led him to research aHUS and discover the Complement Factor H mutation. Sean has been on dialysis for 25 years but has recently had a successful transplant, supported by eculizumab. He is a Geordie and lives in Newcastle upon Tyne ( my profile pic is taken on the Tyne Bridge!)…Continue
Posted on August 12, 2014 at 3:38pm — 4 Comments
Six aHUS patients family or carers went to Downing St this week to present a paper petition to the Prime Minister.
The petition called for him to tell the NHS to implement treatment for all aHUS Patients who need it immediately.
The 3000 signatures on the petition were raised in just five days! The public are supporting our call for justice
More pictures of the event and the aHUS Super Six can be seen by clicking…Continue
Posted on March 29, 2013 at 6:29am — 6 Comments