The Atypical HUS Foundation

Liz mills
  • Female
  • Des Moines, IA
  • United States
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June 4
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
My membership request involves business interests as I seek additional aHUS information for business applications.

Liz mills's Blog


Hi ! Just hoping someone sees this and has some sort of idea as to what I am talking about. I was diagnosed with atypical HUS June 2015. Since then my kidneys have been improving but I have INTENSE left side pain. It is right below my left kidney. After ct scans, getting my appendix removed and ultra sounds. No one is finding a reason for my pain. I am so frustrated. I am learning what I can about AHUS but does anyone have chronic pain with this disease?

Posted on March 9, 2016 at 6:51pm — 2 Comments

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At 2:39pm on July 29, 2015, Linda Burke said…

Hi Liz,

Welcome - we hope that you find this site to be a source of information and support.  As a newly diagnosed adult, please check out the aHUS Bootcamp tab for a good overview of aHUS.




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