The Atypical HUS Foundation

Madeleine Lekas
  • Female
  • Chicago, IL
  • United States
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Profile Information

Birthday
March 9
Do you have a friend or family member diagnosed with aHUS?
Relative
I am a caregiver for an aHUS patient
Yes: for a pediatric aHUS patient
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
no
My child ( or myself as a patient) is best described as:
Question Does Not Apply To My Situation

Madeleine Lekas's Blog

Immune System Boosters

Hello,

Has anyone taking Soliris found any typical methods of immune boosting, ie avoiding gluten, helpful?  My 11 year old daughter is on a bi-weekly dose of Soliris and spikes fevers intermittently which then require heavy doses of antibiotics along with a trip to the hospital.  I hate to cause her any more discomfort, but I was wondering if any one had found any homeopathic ways to boost the immune system while on Soliris.

Thanks,

Mimi

Posted on September 11, 2016 at 8:04pm — 4 Comments

Headaches

Hello,

I hope I am posting this correctly.  My 10 year old daughter was diagnosed this year with aHUS.  She was released from hospital at the end of May.  She is currently taking the bi-weekly dose of Soliris and her lab work looks good.  However last week she was diagnosed with strep, even though she's on the small dosage of penicillin each day.  The strep symptoms are almost gone, but she is complaining of chronic headaches.  Is anyone else experiencing chronic headaches, and have…

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Posted on July 17, 2016 at 8:28pm — 1 Comment

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Join The Atypical HUS Foundation

At 3:37pm on May 18, 2016, Linda Burke said…

Welcome, we hope you find this site to be a source of information and support.  Please check out our aHUS resource list.  You may want to review the aHUS Bootcamp as a starting point, to get an overview of aHUS.

We look forward to your participation on this site.

 
 
 

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