The Atypical HUS Foundation

Megan Russo
  • Female
  • Keuka Park, NY
  • United States
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Megan Russo's Friends

  • Jillian Ingram
  • Marilyn Cline
  • Lisa Grooms
  • sabrina molinari ,Isabella Pagan
  • Barbara Farcher
  • David H Deffenbaugh
  • Alyssa Deffenbaugh
  • Jill Ziegler
  • Grace
  • Linda Burke

Megan Russo's Page

Profile Information

July 28
Do you have a friend or family member diagnosed with aHUS?
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
My membership request involves business interests as I seek additional aHUS information for business applications.
My child ( or myself as a patient) is best described as:
Factor H (CFH) /Protein (Gene)

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Megan Russo's Blog

Challenges Across the Board

Hey everybody, It's been a long time since I've provided an update on how things are for me so I wanted to take some time to do that. This last quarter of the year, has undoubtedly been the hardest for me since being diagnosed. I've held on to faith and hope that treatment would keep me going but my circumstances have been less than ideal. 

I just ended my (hopefully) last fall semester of college, and it definitely gave me a run for my money. In October I was asked to be a…


Posted on December 17, 2015 at 5:50pm

ASH Take Aways

Earlier this December I was honored to attend the ASH (American Society of Hematology) conference. I was blown away by the amount of people who attended and humbled to speak with doctors to gain information on the newest technologies for aHUS. The first day there we had a lot of doctors from other countries approach our booth who did not have access to treatment. The remainder of the event we had many doctors and researchers approach us that did not know the foundation existed. Overall, ASH…


Posted on December 17, 2015 at 4:03pm

Following up - The Fight Isn't Over

Hi guys! I'm sorry that I have not been super active on the pages, life as we all know it has been crazy and very fast moving! I have gotten many emails over the past couple months, many from people asking how I am doing now, so I feel that it is only fair and appropriate to provide some updates as to where I am today. 

The last time that I wrote, I was a manager at a store called Chicos. I have since put in two weeks (months ago) and am currently a full time employee at an…


Posted on May 24, 2015 at 10:32pm — 1 Comment

My Journey with aHUS

First off, my name is Megan, I am a college student, a dedicated worker, a sister, a daughter, a friend, and LASTLY a patient. I do not let aHUS define me and while I acknowledge that I have it and have limitations, I also don't let it control my life. I was diagnosed the summer of my sophomore year in college, and just finished my fall semester of my junior year. I typically take 18 credits, although this semester I only took 15. However I also have three jobs on top of my frequent doctors…


Posted on December 15, 2014 at 9:00pm — 4 Comments

Comment Wall (4 comments)

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At 6:54pm on December 31, 2014, Jillian Ingram said…

PS:  Happy New Year!!

At 6:53pm on December 31, 2014, Jillian Ingram said…

Hi Megan,  Thank you for the invitation to your talk at your church in Bridgeton, NJ.  It is quite a distance from my location (75 miles) - otherwise I would have tried to make it.  Good luck with your presentation!  I believe it is important to educate other people about how a rare and potentially catastrophic illness affects your life.

At 10:28pm on December 13, 2014, Barbara Farcher said…

Hi Megan!! I am so glad you found this website! It is an incredible resourse.  If you'ren new to the disease, please check out the bootcamp, it answers lots of questions.  Feel free to ask questions, and tell your story.  Welcome :-)

At 11:07pm on December 12, 2014, Linda Burke said…

Welcome to the website, we hope you find this to be a source of support and information.




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