The Foundation for Children with Atypical HUS

Monica D. Keleher
  • Female
  • Mount Vernon, IA
  • United States
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Monica D. Keleher's Friends

  • Selma Bennett
  • Destiny Floyd-Rakes
  • Jill Ziegler
  • Svetlana Finley
 

Monica D. Keleher's Page

Latest Activity

Monica D. Keleher and Selma Bennett are now friends
Oct 17, 2011
Monica D. Keleher left a comment for Svetlana Finley
"Hello Svetlana -was so great to meet you at the meeting!  Thank you for the friend invite :)  Take care, Monica"
Oct 12, 2011
Monica D. Keleher is now friends with Svetlana Finley and Destiny Floyd-Rakes
Oct 12, 2011
Monica D. Keleher left a comment for Jill Ziegler
"Hi Jill - I was so amazingly wonderful to meet you in person this past weekend at the aHUS Parent Conference.  What a beautiful person you are, inside and out!  Blessings to you! Monica"
Oct 11, 2011
Monica D. Keleher and Jill Ziegler are now friends
Oct 11, 2011
Linda Burke left a comment for Monica D. Keleher
"Happy Nurses Week - we join with your patients in appreciation for your exceptional care!  "You heal sometimes. You relieve often. You comfort always." Camus. "
May 11, 2011
Cheryl Biermann left a comment for Monica D. Keleher
"Hi Monica, Welcome to our site, and thank you for your interest...as you can see, there are many concerns with us, and we try to help each other as best we can.  Ditto to Linda's thanks, being a nephrology nurse requires a special…"
May 2, 2011
Linda Burke left a comment for Monica D. Keleher
"Hi Monica, Thanks for all you do for the nephrology kiddos in Iowa !"
May 1, 2011
Monica D. Keleher is now a member of The Foundation for Children with Atypical HUS
May 1, 2011

Profile Information

Birthday
February 27
Do you have a friend or family member diagnosed with aHUS?
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
Yes
My membership request involves business interests as I seek additional aHUS information for business applications.
I am a Specialty Nurse at UIHC in the Pediatric Nephrology Division - working closely with Drs. Carla Nester and Pat Brophy.

Comment Wall (3 comments)

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Join The Foundation for Children with Atypical HUS

At 11:17pm on May 11, 2011, Linda Burke said…

Happy Nurses Week - we join with your patients in appreciation for your exceptional care!

 "You heal sometimes. You relieve often. You comfort always." Camus. 

At 5:22pm on May 2, 2011, Cheryl Biermann said…

Hi Monica,

Welcome to our site, and thank you for your interest...as you can see, there are many concerns with us, and we try to help each other as best we can.  Ditto to Linda's thanks, being a nephrology nurse requires a special person!

At 10:41pm on May 1, 2011, Linda Burke said…

Hi Monica,

Thanks for all you do for the nephrology kiddos in Iowa !

 
 
 

WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!

The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.


NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.

************************

NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.

 

Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
  
• • • • • • • • • • • •
  
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
  
more factoids...

Help us fight the battle

Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

  

  
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com


Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.



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