The Atypical HUS Foundation

Rebecca Redshaw
  • Female
  • Mount Vernon, WA
  • United States
Share on Facebook Share
  • Blog Posts
  • Discussions (2)
  • Events
  • Photos
  • Photo Albums
  • Videos

Rebecca Redshaw's Discussions

Soliris: Stop or Continue?
2 Replies

My sister has been on Soliris for several months and has shone marked improvement. A month ago she suffered a seizure that resulted in a hospital stay for more than a month and because of the…Continue

Started this discussion. Last reply by Rebecca Redshaw Apr 11, 2016.

 

Rebecca Redshaw's Page

Latest Activity

Rebecca Redshaw replied to Rebecca Redshaw's discussion Soliris: Stop or Continue?
"Thanks for the quick response. Tough decisions but appointment has been made with the doctor before deciding anything."
Apr 11, 2016
Len Woodward replied to Rebecca Redshaw's discussion Soliris: Stop or Continue?
"Good advice already to talk to doctors . there is someone in Minesota who had a stroke ( not seizure )and is on eculizumab still. I am not a doctor but I have heard complement plays a part in repurfusion injury which follows a stroke, like it does a…"
Apr 11, 2016
Rebecca Redshaw posted a discussion

Soliris: Stop or Continue?

My sister has been on Soliris for several months and has shone marked improvement. A month ago she suffered a seizure that resulted in a hospital stay for more than a month and because of the hospital limitations the drug could not be administered. Her improvement from the seizure has been very successful (with intense rehab and therapy) and her cognitive awareness and general demeanor has markedly improved. Now the family (including my sister) is wondering should she restart Soliris and…See More
Apr 10, 2016
Linda Burke left a comment for Rebecca Redshaw
"Hi Rebecca, Thanks for being an active advocate for your sister - and we hope you find this site to be a source of information and support.  "
Jan 27, 2016
Rebecca Redshaw is now a member of The Atypical HUS Foundation
Jan 27, 2016

Profile Information

Birthday
May 27
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for an adult with aHUS
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
Journalist research
My child ( or myself as a patient) is best described as:
Question Does Not Apply To My Situation

Comment Wall (1 comment)

You need to be a member of The Atypical HUS Foundation to add comments!

Join The Atypical HUS Foundation

At 10:35pm on January 27, 2016, Linda Burke said…

Hi Rebecca,

Thanks for being an active advocate for your sister - and we hope you find this site to be a source of information and support.  

 
 
 

Badge

Loading…

© 2018   Created by Deborah Lewis.   Powered by

Badges  |  Report an Issue  |  Terms of Service