The Atypical HUS Foundation

Rishab Bose
  • Male
  • Bhubaneswar, ODISHA
  • India
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Rishab Bose's Page

Latest Activity

Rishab Bose left a comment for Kim Donan
"Kim, Do not worry. You will be alright. My nephew age 8yers is detected with aHUS. He had gone for many times plasmapherosis and Dialysis. Now he is doing well. You can share experience in mail ID aurobindabose@yahoo.com. Thank You"
Jan 14, 2016
Linda Burke left a comment for Rishab Bose
"Hi there, With such a rare disease as this, few resources are available on a large scale.  Given the expense of treatment, financial support sadly falls on patients, families, and insurance options within each nation.   While The Atypical…"
Oct 18, 2015
Rishab Bose left a comment for Linda Burke
"Thank you Linda . Yes we are in touch with Mr. kamal shah .Here,aHUS foundation INDIA expressed their inability for financial help. Also, I wanted to ask if needed can we send our sons reports to the panel of doctors for their…"
Oct 17, 2015
Linda Burke left a comment for Rishab Bose
"I am so sorry to hear that your son is having such a difficult time.  Have you connected yet with Atypical HUS India?  Its founder Kamal Shah is online here."
Sep 30, 2015
Rishab Bose is now a member of The Atypical HUS Foundation
Sep 30, 2015

Profile Information

Birthday
November 16
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for a pediatric aHUS patient
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
at present under plasma pherosis
My child ( or myself as a patient) is best described as:
Not Tested

Comment Wall (2 comments)

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At 7:24pm on October 18, 2015, Linda Burke said…

Hi there,

With such a rare disease as this, few resources are available on a large scale.  Given the expense of treatment, financial support sadly falls on patients, families, and insurance options within each nation.   While The Atypical HUS Foundation has a medical board which review content to ensure accuracy, they do not provide medical information to patients as part of their volunteer position.  The Doc to Doc Directory has a list of physicians that other physicians can contact for medical advice and consultation, so that may be helpful for your child's doctors to contact with their questions.  Kamal can inform you of another other options that are specific to Indian aHUS patients, but we all are face similar situations as patient or caregivers - it is difficult for us all when the disease diagnosis is so rare.

At 11:53pm on September 30, 2015, Linda Burke said…

I am so sorry to hear that your son is having such a difficult time.  Have you connected yet with Atypical HUS India?  Its founder Kamal Shah is online here.

 
 
 

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