The Atypical HUS Foundation

Samantha Blaszynski
  • Aurora, IL
  • United States
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Samantha Blaszynski's Friends

  • Santosh Suryawanshi
  • Gabriella Goncha
  • Daniel Sternfeld
  • Brett Lettiere
  • Len Woodward
  • Kamal D Shah

Samantha Blaszynski's Discussions

aHUS and eculizumab
6 Replies


Started this discussion. Last reply by Len Woodward Apr 11, 2016.


Samantha Blaszynski's Page

Latest Activity

Santosh Suryawanshi left a comment for Samantha Blaszynski
"Hi Samantha, I have accepted your friend request.. -Thanks Santosh"
Apr 14
Samantha Blaszynski left a comment for Santosh Suryawanshi
"Good day Sir,  Ms. Linda Burke asked me to contact you about questions you have. Please accept my friend request so that we may be in contact. Sincerely, Samantha Blaszynski"
Apr 13
Len Woodward and Samantha Blaszynski are now friends
Apr 12, 2016
Len Woodward replied to Samantha Blaszynski's discussion aHUS and eculizumab
"You can see Kamal talkin in London on this video ▶ 15:58"
Apr 11, 2016
Len Woodward replied to Samantha Blaszynski's discussion aHUS and eculizumab
"It was good to meet them too with such a surprising story which I have not forgot. I have said this before but it is a wonderful experience when aHUS folk meet up and everyone should take advantage of a regional meeting provided by the Foundation…"
Apr 11, 2016
Samantha Blaszynski replied to Samantha Blaszynski's discussion aHUS and eculizumab
"When I first joined this board I was put in contact with Kamal. I have not met him personally, but know his story. He works closely with Dr. Sethi with his organization.  "
Apr 11, 2016
Samantha Blaszynski replied to Samantha Blaszynski's discussion aHUS and eculizumab
"My parents went to Iowa in 2014 to gather information on our behalf. They spoke highly of all the wonderful people they met and all the information they learned for us. Yes BUPA was our insurance provider while we were in India. It took a month…"
Apr 11, 2016
Len Woodward replied to Samantha Blaszynski's discussion aHUS and eculizumab
"Samantha your blog ties in with two other discussions right now involving Kamal who is from India and leads patient organisation aHUS India"
Apr 11, 2016
Len Woodward replied to Samantha Blaszynski's discussion aHUS and eculizumab
"Hi Samantha I met Jacob's grandparents in Iowa back in. 2014 . It is good to know about his recovery because I know how difficult your situation was. But I believe BUPA was of help. Great to see you are championing access for eculizumab in…"
Apr 11, 2016
Samantha Blaszynski posted a discussion

aHUS and eculizumab article was written about our son, Jacob. We were living in India at the time of his first episode with aHUS. This article was written to bring awareness to the need for eculizumab in all countries. Jacob was able to…See More
Apr 5, 2016
Samantha Blaszynski updated their profile
Apr 1, 2016
Samantha Blaszynski is now friends with Gabriella Goncha and Daniel Sternfeld
Apr 6, 2015
Samantha Blaszynski and Kamal D Shah are now friends
Sep 11, 2014
Linda Burke left a comment for Samantha Blaszynski
"Hi Samantha, Welcome to the website, we hope it offers information and support.  Please look for a private message from me in your inbox."
Sep 10, 2014
Samantha Blaszynski is now a member of The Atypical HUS Foundation
Sep 10, 2014

Profile Information

July 14
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for a pediatric aHUS patient
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
I have attended a meeting or conference to learn about aHUS.
Global Genes Meetup
My membership request involves business interests as I seek additional aHUS information for business applications.
My child ( or myself as a patient) is best described as:
Factor H (CFH) /Protein (Gene), MCP (MCP/CD 46)

Comment Wall (2 comments)

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Join The Atypical HUS Foundation

At 12:42am on April 14, 2017, Santosh Suryawanshi said…

Hi Samantha,

I have accepted your friend request..



At 10:29pm on September 10, 2014, Linda Burke said…

Hi Samantha,

Welcome to the website, we hope it offers information and support.  Please look for a private message from me in your inbox.



To ensure proper processing of your membership, please make sure to set your email filters to accept emails, from

The Atypical HUS Foundation is an all-volunteer organization. Please allow at least 72 hours for an email response confirming your membership request.  If you do not receive an email, please check your spam folder or email directly to

Membership is open to patients, family, friends, caregivers research and medical personnel.


The Atypical HUS Foundation encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.

Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.


NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.


Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 2 cases of aHUS in the U.S. per 1,000,000 of population, and about 60% of aHUS patients are diagnosed as children. The condition is potentially life threatening, and either can be chronic or can recur at intervals.
more factoids...

Help us fight the battle

Your donation of $295.for an aHUS pearl bracelet will directly fund research to help aHUSpatient and their families. Each bracelet has an appraised value of $925, and is offered with your gift of $295. Note:  For shipping outside the USA, please add $25. to cover international shipping costs.

(Note: Bracelets do not qualify as tax deductible donations under IRS regulations.)

Normally, aHUS pearl bracelets to be made-to-order and as such expect a 4 to 6 week window before your custom bracelet is shipped.  In a rush?  Contact with your request and details.


 Donations of a specific dollar amount are welcome-every dollar will help aHUS research efforts supported by The Atypical HUS Foundation at

Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Atypical HUS Foundation may be mailed to:

The Atypical HUS Foundation
C/O Deborah Lewis
PO Box 333
Barnhart, MO 63012

For pearl bracelet orders, please allow extra time for processing checks. Questions about aHUS donations? Please email



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