"hi scott,
im good thank you. wow, good luck sunday"
-
Scott Woodruff
- Male
- Dana Point, CA
- United States
- Blog Posts (1)
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Scott Woodruff's Page
Latest Activity
Scott Woodruff left a comment for Cassie"Hey Cassie, how's things? I'm Linda and Sky Burke's nephew and cousin, respectively. Welcome to the network!"
Linda Burke commented on Scott Woodruff's blog post aHUS Bike Ride Update"MANY THANKS,Scott! We really appreciate all your efforts in raising funds for and awareness of aHUS!"
Linda Burke commented on Scott Woodruff's event Scott Woodruff bike ride for aHUS"Lookin' good, Scott! Congrats to Team Elevate!"
Linda Burke commented on Scott Woodruff's blog post aHUS Bike Ride Update"So sorry to check the htt://temaelevate.tumblr.com site to see that immediately upon arrival, your car was broken into! Scott, how low can they sink to steal all your electronics!! Letting you know that we appreciate all you do for raising awareness…"
Phyllis Ann Talbot commented on Scott Woodruff's blog post aHUS Bike Ride Update"That's really great Scott!! Good luck on Sunday!!! I'm jealous - definitely couldn't do that - my sister and brother-in-law have done 'metric centuries' 100 km - but that's even vicariously for me! ;-)"
Linda Burke left a comment for Scott Woodruff"That's fantastic, Scott! Although I can't imagine blogging while in a bike race, I can't wait to follow you on July 12th!"
Scott Woodruff posted a blog postaHUS Bike Ride Update
I just got back from my aHUS fundraiser at my local watering hole, and it was a great time with a great turn out! We raised $350 from just cash donations for the Foundation! It was great for everyone to come and show their support on a Wednesday night.I will be riding my bicycle 100 miles in San Jose this Sunday for the Foundation for Children with aHUS, and I'm really excited. I will have my blogging device with me during the ride updating it for all to see. Seriously. Check out…See More
Scott Woodruff commented on Scott Woodruff's event Scott Woodruff bike ride for aHUS"UPDATE: Training is going great and I'm feeling confident and ready for this big challenge! We've raised more than $600 for aHUS through generous donations, and with one more fundraiser next Wedensday, we're looking to get well beyond…"
Linda Burke commented on Scott Woodruff's event Scott Woodruff bike ride for aHUS"Thanks to Scott K. from Dana Point, CA for his donation to the Foundation for Children with Atypical HUS as Scott Woodruff bikes the Livestrong Challenge - raising funds and awareness for aHUS!"
Svetlana Finley commented on Scott Woodruff's event Scott Woodruff bike ride for aHUS"I wish we can be attending, we will be thinking about u next week. Thanks"
Linda Burke commented on Scott Woodruff's event Scott Woodruff bike ride for aHUS"Daily training with 15 to 20 miles - and double that on the weekends, pretty amazing stuff! Brad and I will be with you in spirit next Wednesday as you encourage friends at your "local watering hole" to donate to a great cause! Thanks so…"
Scott Woodruff left a comment for Linda Burke"Hi Linda, that's great to hear about the nice weekend you guys had at LDI! Sure wish I could've been there!
Training is going well so far. Logging about 100-120 miles per week via 15-20 mile rides almost every day, with a 30-40 longer ride…"
Linda Burke left a comment for Scott Woodruff"Hi Scott,
We just got back from LDI- Skyler enjoyed swimming in Casco Bay with Will. I was pleased to tell your Dad and Doris how grateful we are that you are participating in the Livestrong Challenge on behalf of the Foundation for Children with…"
Profile Information
- Birthday
- November 4
- Do you have a friend or family member diagnosed with aHUS?
- Yes
Scott Woodruff's Blog
aHUS Bike Ride Update
I just got back from my aHUS fundraiser at my local watering hole, and it was a great time with a great turn out! We raised $350 from just cash donations for the Foundation! It was great for everyone to come and show their support on a Wednesday night.
I will be riding my bicycle 100 miles in San Jose this Sunday for the Foundation for Children with aHUS, and I'm really excited. I will have my blogging device with me during the ride updating it for all to see. Seriously. Check out… Continue
I will be riding my bicycle 100 miles in San Jose this Sunday for the Foundation for Children with aHUS, and I'm really excited. I will have my blogging device with me during the ride updating it for all to see. Seriously. Check out… Continue
Posted on July 9, 2009 at 2:21am — 3 Comments
Comment Wall (4 comments)
- At 11:47pm on September 10, 2009,
Cassie said… - hi scott,
im good thank you. wow, good luck sunday
- At 12:16am on July 10, 2009, Linda Burke said…
- That's fantastic, Scott! Although I can't imagine blogging while in a bike race, I can't wait to follow you on July 12th!
- At 9:39pm on June 26, 2009, Linda Burke said…
- Hi Scott,
We just got back from LDI- Skyler enjoyed swimming in Casco Bay with Will. I was pleased to tell your Dad and Doris how grateful we are that you are participating in the Livestrong Challenge on behalf of the Foundation for Children with aHUS. How about an update on training or fundraising progress? Is there a favorable long-range weather forecast? Cheers, Linda
- At 10:01pm on June 15, 2009, Linda Burke said…
- Welcome, Scott! Thanks for raising awareness of aHUS in conjunction with the Livestrong Challenge. Folks in California will see your kind tribute to Hunter and Skyler wondering "What's aHUS?", so please feel free to put our website URL wherever that question might arise. You can send aHUS virtual bracelets to friends and family as well, click right on the home page! Bless you for your support of our family and the aHUS community - can't wait to follow you on the Livestrong Challenge!. Safe Journey, Scott!
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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