The Foundation for Children with Atypical HUS

Sharon Schardan
  • Female
  • Collinsville, IL
  • United States
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  • Cheryl Biermann
 

Sharon Schardan's Page

Latest Activity

Sharon Schardan updated their profile
Mar 8
Sharon Schardan is attending Bill Biermann's event

St. Louis Fundraiser - 2012 Trivia Night at Carpenters Hall

March 24, 2012 from 6pm to 7pm
Join us for an evening of Fun, but most importanly, to raise funds for our future research efforts.   Remember, 100% of what we do does directly to the Foundation!Where:   St. Louis, MOWhen:   March 24thWe are looking for donations of trips,hotels, sports memorbilia, or anything else of value.See More
Mar 8
0 Comments
Linda Burke left a comment for Sharon Schardan
"Thanks for joining the interactive website of The Foundation for Children with Atypical HUS. Sharing information and support are important goals for us, so we look forward to your input and to hearing your story."
Feb 27, 2010
Cheryl Biermann left a comment for Sharon Schardan
"Hi Sharon! It's good to see you here. I'm trying to get Nathan to look at some of the less intimidating things...like Donna Kolp's notes on her son Jonnathon. It's good to see kids this successful while dealing with all the…"
Feb 25, 2010
Sharon Schardan is now a member of The Foundation for Children with Atypical HUS
Feb 24, 2010
Welcome Them!

Profile Information

Birthday
January 29
Do you have a friend or family member diagnosed with aHUS?
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
Not applicable
My child ( or myself as a patient) is best described as:
Question Does Not Apply To My Situation

Comment Wall (2 comments)

You need to be a member of The Foundation for Children with Atypical HUS to add comments!

Join The Foundation for Children with Atypical HUS

At 8:58pm on February 27, 2010, Linda Burke said…
Thanks for joining the interactive website of The Foundation for Children with Atypical HUS. Sharing information and support are important goals for us, so we look forward to your input and to hearing your story.
At 8:29am on February 25, 2010, Cheryl Biermann said…
Hi Sharon! It's good to see you here. I'm trying to get Nathan to look at some of the less intimidating things...like Donna Kolp's notes on her son Jonnathon. It's good to see kids this successful while dealing with all the medical stuff!
 
 
 

WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!

The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.

NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.

************************

NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.

 

Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
  
• • • • • • • • • • • •
  
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
  
more factoids...

Help us fight the battle

Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

  

  
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com


Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.



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