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Shirley L Cosgriff
- Female
- Vestal, NY
- United States
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Shirley L Cosgriff's Page
Latest Activity
Shirley L Cosgriff left a comment for Linda Burke"Linda, Thank you for getting to me. I have sent an invitation to my niece to join the Foundation and she had accepted this morning. I did see she hasn't added much but I think everything is still a big shock for her. I commented on her site and…"
Shirley L Cosgriff left a comment for Candace Mulcahy"Candy, I hope this website helps you. I have given your email address to Heather Still who has a son Ryan 7yrs old and has had this since he was an infant. She also goes to Upstate and she should be a lot of support. Please let me know if I can do…"
Linda Burke left a comment for Shirley L Cosgriff"Hi Shirley,
Welcome to the interactive website for the Foundation for Children with Atypical HUS, where we share information, inspiration, and insight about aHUS experiences. We look forward to hearing about your interest in this rare disease."
Heather Still left a comment for Shirley L Cosgriff"Welcome Shirley. I emailed you through your work email address. My son has been treated at Upstate in Syracuse for many years and I will be happy to help your family along the way. Please let me know if there's anything I can do to help."
Profile Information
- Birthday
- November 14
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- My child ( or myself as a patient) is best described as:
- Question Does Not Apply To My Situation
Comment Wall (2 comments)
- At 8:12pm on January 26, 2010, Linda Burke said…
- Hi Shirley,
Welcome to the interactive website for the Foundation for Children with Atypical HUS, where we share information, inspiration, and insight about aHUS experiences. We look forward to hearing about your interest in this rare disease.
- At 7:00pm on January 26, 2010, Heather Still said…
- Welcome Shirley. I emailed you through your work email address. My son has been treated at Upstate in Syracuse for many years and I will be happy to help your family along the way. Please let me know if there's anything I can do to help.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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