The Atypical HUS Foundation

Stephanie Boulay
  • Female
  • Leander, TX
  • United States
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Stephanie Boulay's Discussions

Cellcept

Has anyone used Cellcept in conjunction with Soliris? My sons nephrologist wants to put him on Cellcept in hopes of lowering his factor H antibodies and I was curious if anyone else has tried…Continue

Started Nov 15, 2015

 

Stephanie Boulay's Page

Latest Activity

Stephanie Boulay updated their profile
Nov 15, 2015
Stephanie Boulay replied to Anne Bruns's discussion FH auto antibodies
"My son who is 7 just got the same diagnosis and his Dr is starting him on Cellcept. He said it was to try to suppress his immune system. He is also currently on Soliris which he started three weeks ago to help immediately because the Cellcept might…"
Nov 15, 2015
Stephanie Boulay posted a discussion

Cellcept

Has anyone used Cellcept in conjunction with Soliris? My sons nephrologist wants to put him on Cellcept in hopes of lowering his factor H antibodies and I was curious if anyone else has tried is?ThanksStephSee More
Nov 15, 2015
Linda Burke left a comment for Stephanie Boulay
"Hi Stephanie,   Welcome to this site, which we hope will provide both information and support."
Nov 12, 2015
Stephanie Boulay is now a member of The Atypical HUS Foundation
Nov 12, 2015

Profile Information

Birthday
December 19
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for a pediatric aHUS patient
I am an adult aHUS patient.
No
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
No
My child ( or myself as a patient) is best described as:
Anti-FH-Ab (CFHR1/CFHR3)

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At 3:39pm on November 12, 2015, Linda Burke said…

Hi Stephanie,  

Welcome to this site, which we hope will provide both information and support.

 
 
 

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