"Hi Bill! I sent my form in for Trivia last week and had 6 people total but we have 2 more that are oing to join us. Should I send in the money now or can they pay at the door? Let me know which way is best! It's possible…"
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Susan Bauer
- Female
- Grover, MO
- United States
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Susan Bauer's Page
Latest Activity
Susan Bauer is attending Cheryl Biermann's event10th Annual Trivia/Auction at The Carpenter's Hall
February 26, 2011 from 6pm to 7pm
!0 rounds of pure sillyness, and shopping too, how can it get any better?
Cheryl Biermann left a comment for Susan Bauer"Hi Susan! Welcome to our site! Are you the friend of Phyllis? It will be great to see you again, if not, it will great to meet you! I hope this site gives you all the information you were looking for."
Susan Bauer is attending Cheryl Biermann's eventThe Atypical HUS Annual Trivia/Auction at The Carpenter's Hall
March 20, 2010 from 6pm to 11pm
Ten rounds of trivial pursuit with zany entertainment and audience participation. Silent auction closes after the sixth round of trivia. Oral auction following the ninth round. Silent auction consists of usually over 100 baskets/large items. Oral auction cosists of signed sports items, a vacation and other large ticket items.
Linda Burke left a comment for Susan Bauer"Thanks for joining the interactive website of The Foundation for Children with Atypical HUS - we appreciate your interest and support."
Profile Information
- Birthday
- April 4
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- No
- My membership request involves business interests as I seek additional aHUS information for business applications.
- no
- My child ( or myself as a patient) is best described as:
- Question Does Not Apply To My Situation
Comment Wall (2 comments)
- At 8:24am on March 2, 2010, Cheryl Biermann said…
- Hi Susan! Welcome to our site! Are you the friend of Phyllis? It will be great to see you again, if not, it will great to meet you! I hope this site gives you all the information you were looking for.
- At 3:14pm on March 1, 2010, Linda Burke said…
- Thanks for joining the interactive website of The Foundation for Children with Atypical HUS - we appreciate your interest and support.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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