The Atypical HUS Foundation

Svetlana Finley
  • Female
  • Salem, OR
  • United States
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Svetlana Finley's Friends

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Svetlana Finley's Discussions

Platelets aggregation

Started Dec 29, 2010

Leg cramps
3 Replies

Started this discussion. Last reply by Cheryl Biermann Sep 13, 2009.


Welcome, Svetlana Finley!

Profile Information

October 8
Do you have a friend or family member diagnosed with aHUS?
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
My child ( or myself as a patient) is best described as:
Tested but Awaiting Results

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Svetlana Finley's Blog

Anna and Soliris

Anna just finished her 4th week Soliris treatment. She is been doing very well, less complains about headaches or any kinda pains (back, knee, tummy) and NO blood and protein in her urine. We start Soliris with her labs been good except her urine and we are glad even for this little thing that we don't need to worry. She will continue to get Soliris for about 6 mo. then we will make decision what will be our next step.

Posted on May 18, 2012 at 11:44am — 2 Comments

Update on Anna Finley and questions

It is been crazzy here seems one thing after another. She had her ear surgery in December, then in January she started having back pains and blood and proteine in her urine. Then in February she had stomuch paint to the point she totally stoped eating doctors  diagnosed her with Lactose intolarance, telling me she cant have any dairy product and putting her on 3 different medications for it. I looked up on internet about Lactose intolarance and finding out Anna never had any of the simptoms…


Posted on April 4, 2012 at 5:17pm — 4 Comments

Update on Anna Finley

Hi everyone,

First i want to sat Thanks to Cheryl for keeping updating on Anna and thanks everyone to continue praying for her.

Anna is full of mistery, no one knows what is going on with her right now. All her labs are good except blood in her urine, her Platelets are normal it looks like everytime we do labs they r higher and higher hmmm... She has some back pains and not eating very much.

Yesterday we were first ones to see our doctor and last ones left her office…


Posted on January 31, 2012 at 7:48am — 1 Comment

What hotel for conference?

I am wondering those who coming to the conference what hotel everyone planing to stay? I would like to stay where other will be staying, so we can carpool.

Posted on September 15, 2011 at 10:21am — 4 Comments

Update on Anna and CD46

Hello everyon!!!

It's been awile since i updated on Anna. She is been doing well and enjoying gymnastics. Today we had our visit with our doctor, Annas labs continue stay where we like them too. They took her off blood pressure medication one medication less ;-) We also had disscation on some testing they did in the begining this year so she is positive for CD46 and she just below range for Factor B normal for it was 20-51 and hers is 19, so our doctor dosen't know really if that is…


Posted on September 12, 2011 at 11:48pm — 2 Comments

Comment Wall (43 comments)

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At 8:58pm on October 27, 2014, Linda Burke said…

So good to see you in Iowa, wish we'd had more time to catch up.  Can't believe how grown up Anna is - lovely!

At 11:13pm on February 18, 2014, Kathy Kennedy said…

Hi Svetlana - thanks so much for making a comment & adding me as a friend.  It is nice to have a "friend" on here.  I watched the video about Anna & loved it.  She loves like an absolutely wonderful girl with a great spirit! 

At 10:27pm on November 28, 2012, Kimberly Tressler said…
Dance is going well. She made it through class tonight but is tired. Also next week will be last physical therapy appointment.
At 4:19pm on October 14, 2011, Ryan Still said…
hey Svetlana Finley how is Anna doing
At 4:26am on October 12, 2011, Monica D. Keleher said…
Hello Svetlana -was so great to meet you at the meeting!  Thank you for the friend invite :)  Take care, Monica
At 7:58am on October 11, 2011, Selma Bennett said…

Yes! It was so great to meet you too! Glad you made it home safe and sound. Still trying to process all the information we got at conference. A time full of tears, many smiles and lots of hope!



At 1:46pm on August 23, 2011, Ryan Still said…
6 medals nice
At 5:14pm on August 15, 2011, Ryan Still said…
How many medals has she won
At 3:59pm on August 14, 2011, Ryan Still said…
Hi Svetlana how long has Anna been doing gymnastics
At 8:34am on May 10, 2010, Elizabeth Farrell said…
Hi Svetlana
Thanks for sharing that information.It's good to know that episodes can be that far apart.I hope your daughter is making a good recovery. Liz



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