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TAMARA FERNANDEZ MEGIAS
- Female
- GRANADA, ANDALUCIA
- Spain
- Blog Posts (2)
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TAMARA FERNANDEZ MEGIAS's Page
Latest Activity
Aldo Arias left a comment for TAMARA FERNANDEZ MEGIAS"Hola Tamara,Aldo empezó un jueves en la mañana con vómitos muy recurrentes y por la tarde lo lleve al hospital de emergencia pensamos que se trataba de un virus y que se le pasaría en unos días,le tomaron muestras…"
TAMARA FERNANDEZ MEGIAS left a comment for Aldo Arias"Hola Aldo, siento mucho que tu hijo haya contraido la enfermedad, es duro pero se lleva bien, espero que mejore la situacion, cuentame como está el? que yo sepa hay una persona mas aqui que habla en español y ella es Maria Vicenta…"
Aldo Arias left a comment for TAMARA FERNANDEZ MEGIAS"Hola,tamara siento mucho lo k estas pasando mi esposa y yo tenemos 2 niños y 1 niña de 6 3 y 20 meses respectivamente y al Aldo mi hijo mayor desafortunadamente tiene aHUS hace apenas 2 meses k la contrajo,me gustaría…"
maria vicenta carratala rios left a comment for TAMARA FERNANDEZ MEGIAS"ALA, TAMARA, COMO AVANZAS CON EL INGLES. ME ALEGRO UN MONTON. QUE ESTES EN LA FUNDACION. UN ABRAZO"
TAMARA FERNANDEZ MEGIAS commented on TAMARA FERNANDEZ MEGIAS's photo
te quieroo
"Cheryl, thank you very much for your comment, the truth is that it means everything to me, thank my family and I continue to face problems and looking forward, and my son would do it all!a greeting!"
TAMARA FERNANDEZ MEGIAS commented on Sharon Madrid's blog post Genetic Results...."Sharon thank you for sharing your story with us!"
TAMARA FERNANDEZ MEGIAS commented on TAMARA FERNANDEZ MEGIAS's blog post Hi!!"Phyllia and Talbot thank you for your coment. I hope we can be friends, greetings!"
Phyllis Ann Talbot commented on TAMARA FERNANDEZ MEGIAS's blog post Hi!!"SO nice to meet you too Tamara and thanks for sharing your story! here's best wishes to sunnier days ahead!
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Profile Information
- Birthday
- February 17
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- Yes
- My membership request involves business interests as I seek additional aHUS information for business applications.
- no
- My child ( or myself as a patient) is best described as:
- Tested but Results are Inconclusive
TAMARA FERNANDEZ MEGIAS's Photos
TAMARA FERNANDEZ MEGIAS's Blog
Hi!!
I am very happy to be part of this community, because now I'm not alone in this.
Thanks to Maria Vicenta for all the support and thank you all for the welcome.
I hope to continue making good friends… Continue
Thanks to Maria Vicenta for all the support and thank you all for the welcome.
I hope to continue making good friends… Continue
Posted on July 22, 2011 at 3:35am — 2 Comments
MY LITTLE HISTORY
Hi all, I come, my name is Tamara and I am a kidney patient on dialysis because of atypical hemolytic uremic syndrome, which develops after giving birth to my son in 2008 and in conjunction with taking birth control pills.
I am currently pending completion of a genetic study to assess the situation of my…
Posted on July 21, 2011 at 10:38am — 5 Comments
Comment Wall (6 comments)
- At 8:37pm on September 6, 2011, Aldo Arias said…
- Hola Tamara,Aldo empezó un jueves en la mañana con vómitos muy recurrentes y por la tarde lo lleve al hospital de emergencia pensamos que se trataba de un virus y que se le pasaría en unos días,le tomaron muestras de sangre y al día sig.lo vio su pediatra y ordeno mas mustras de sangre y encuanto obtuvo los resultados nos mando al Childrens Healt care of Atlanta y ahí estubo 31/2 semanas ocupo 3 transfusiones y sus riñones nomas trabajaban el 20% y su estado era muy critico,gracias a Dios el SOLARIS Le esta probando y ahora ocupa ir cada 2 semanas a recibir la medicina pero para esto ya le avía afectado el aHUS la vesícula y se la removieron hace 1 mes,el viernes tiene cita con su cirujano para hacerle un ultrasonido,ya que no encontró los cálculos biliares cuando se la removió y ojalá no los tenga en su organismo sino van a tener que hacerle una tractotomia,esperamos en Dios que no se ocupe y que el SOLARIS le siga funcionando como hasta ahorita,platicame tu historia Tamara que estés bien.te voy a hacer una ivitacion en F.B.para que conozcas a Aldo
Hasta pronto
- At 12:18pm on September 5, 2011, Aldo Arias said…
- Hola,tamara siento mucho lo k estas pasando mi esposa y yo tenemos 2 niños y 1 niña de 6 3 y 20 meses respectivamente y al Aldo mi hijo mayor desafortunadamente tiene aHUS hace apenas 2 meses k la contrajo,me gustaría comunicarme con tifo ya k parece k somos los únicos de esta org.k hablamos español nos.somos de mex.pero vivimos en Atlanta,Ga lestes bien y k Dios te bendiga.saludos,o mi nombre es Aldo Arias
- At 6:47am on July 27, 2011, maria vicenta carratala rios said…
- ALA, TAMARA, COMO AVANZAS CON EL INGLES. ME ALEGRO UN MONTON. QUE ESTES EN LA FUNDACION. UN ABRAZO
- At 9:58am on July 21, 2011,
Cheryl Biermann said… - Welcome to the web page, Tamara!
- At 4:21am on July 21, 2011, maria vicenta carratala rios said…
ole ole ole.......... You are wellcome ahus foundation.
- At 1:43am on July 21, 2011,
Linda Burke said… - Any friend of Jose Monfort is most welcome here!
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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