Tara Maga's Page
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Tara Maga replied to Vanessa Fawson's discussion MTHFR Mutation"Hi Vanessa,
My name is Tara and I have been working to identify genetic causes that lead to aHUS for my PhD thesis for the past 5 years in Dr. Richard Smith's Lab. Linda Burke sent me a message about whether or not I know anything about…"
Tara Maga left a comment for Tara Maga"Thank you but it really is a team effort in our lab at Iowa.
Thank you for all of your support by allowing us to perform this type of research to further understand the complexities of aHUS! Without it none of this would be possible."
Linda Burke left a comment for Tara Maga"Congrats on being recognized for your outstanding work with aHUS genetics with a grant!"
Cheryl Biermann left a comment for Tara Maga"Hi Tara! Thanks for adding your profile-tell everyone hello"
Linda Burke left a comment for Tara Maga"Thanks for joining us on the interactive website, Tara! The parents at the Iowa conference really enjoyed the lab tour - you guys certainly have the best of both worlds with the dual lab sections. We really appreciate all the genetic lab work you do…"
Cheryl Biermann left a comment for Tara Maga"Hi Tara! Great to have you here. You did a wonderful job giving us the 10 penny tour, we are so greatful to have you as part of our team...thanks so much for making our time in Iowa so informative and enjoyable."
Profile Information
- Birthday
- February 24
- Do you have a friend or family member diagnosed with aHUS?
- No
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- Yes
Hi Everyone!
I am a PhD student at the University of Iowa studying the genetics of aHUS. We are studying what other genes may contribute to the development of aHUS to gain a better understanding of this complex disease. I am not an MD but If anyone has questions on the genetics of aHUS or how complement is involved in this disease I would be more then willing to try and answer them.
I am a PhD student at the University of Iowa studying the genetics of aHUS. We are studying what other genes may contribute to the development of aHUS to gain a better understanding of this complex disease. I am not an MD but If anyone has questions on the genetics of aHUS or how complement is involved in this disease I would be more then willing to try and answer them.
Comment Wall (8 comments)
- At 4:43pm on November 8, 2010, Tara Maga said…
- Thank you but it really is a team effort in our lab at Iowa.
Thank you for all of your support by allowing us to perform this type of research to further understand the complexities of aHUS! Without it none of this would be possible.
- At 5:45pm on November 5, 2010, Cheryl Biermann said…
- I'd like to second that Congratulations!
- At 12:22am on November 5, 2010, Linda Burke said…
- Congrats on being recognized for your outstanding work with aHUS genetics with a grant!
- At 5:02pm on December 9, 2009, Cheryl Biermann said…
- Hi Tara! Thanks for adding your profile-tell everyone hello
- At 8:28am on October 21, 2009,
Svetlana Finley said… - Thanks Tara for joining here!!!!
- At 7:58am on October 21, 2009,
Lisa Goble said… - thanks for joining Tara! and a HUGE thankyou for helping us to find a cure in our kids lifetimes....much appreciated! =)
- At 10:11pm on October 20, 2009, Linda Burke said…
- Thanks for joining us on the interactive website, Tara! The parents at the Iowa conference really enjoyed the lab tour - you guys certainly have the best of both worlds with the dual lab sections. We really appreciate all the genetic lab work you do for the aHUS families - now you can enjoy the cute faces of our aHUS kiddos! If this interactive aHUS community can answer any questions that may be helpful to your work, we're more than happy to oblige. Cheers!
- At 7:26pm on October 20, 2009, Cheryl Biermann said…
- Hi Tara! Great to have you here. You did a wonderful job giving us the 10 penny tour, we are so greatful to have you as part of our team...thanks so much for making our time in Iowa so informative and enjoyable.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
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