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I was diagnosed in February 2016 and have been on Soliris since around May 2016. My wife and I live in Safety Harbor FL , however went to get medical help in NY.
would like to chat if you would be interested, you can email me at tjazylo@gmail.Com
Tom (45 male)
Welcome, we hope you find this site to be a source of information and support.
Please check out our aHUS resource list. You may want to review the aHUS Bootcamp as a starting point, to get an overview of aHUS. We look forward to your participation on this site.
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