The Atypical HUS Foundation

Tracy Kohlhof
  • Female
  • Palm Harbor, FL
  • United States
Share on Facebook Share
  • Blog Posts
  • Discussions
  • Events
  • Photos (1)
  • Photo Albums
  • Videos

Tracy Kohlhof's Page

Profile Information

February 28
Do you have a friend or family member diagnosed with aHUS?
Immediate Family
I am a caregiver for an aHUS patient
Yes: for an adult with aHUS
I am an adult aHUS patient.
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
My membership request involves business interests as I seek additional aHUS information for business applications.
My child ( or myself as a patient) is best described as:
Tested but Awaiting Results

Tracy Kohlhof's Photos

  • Add Photos
  • View All

Comment Wall (2 comments)

You need to be a member of The Atypical HUS Foundation to add comments!

Join The Atypical HUS Foundation

At 11:07pm on January 22, 2017, Thomas Jazylo said…


I was diagnosed in February 2016 and have been on Soliris since around May 2016. My wife and I live in Safety Harbor FL , however went to get medical help in NY.

would like to chat if you would be interested, you can email me at tjazylo@gmail.Com

Tom (45 male)

At 2:22pm on September 1, 2016, Linda Burke said…

Welcome, we hope you find this site to be a source of information and support.

 Please check out our aHUS resource list.  You may want to review the aHUS Bootcamp as a starting point, to get an overview of aHUS.  We look forward to your participation on this site.




© 2018   Created by Deborah Lewis.   Powered by

Badges  |  Report an Issue  |  Terms of Service