The Atypical HUS Foundation

Tricia
  • Female
  • Muskego, WI
  • United States
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Tricia's Discussions

To test or not to test?
2 Replies

Hi! I was diagnosed with AHUS in October. My genetic testing showed that I have a mutation in the CD46 gene, autosomal dominant. I have 4 children, each with a 50% chance of having aHUS. Does anyone…Continue

Started this discussion. Last reply by Debbie Griggs Apr 28, 2016.

 

Tricia's Page

Profile Information

Birthday
April 7
I am a caregiver for an aHUS patient
No
I am an adult aHUS patient.
Yes
Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
No
My membership request involves business interests as I seek additional aHUS information for business applications.
No
My child ( or myself as a patient) is best described as:
MCP (MCP/CD 46)

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At 2:09pm on December 15, 2015, Linda Burke said…

Hi Tricia,

Welcome to this site, we hope you find it to be a source of information and support.  As an adult aHUS patient who has dealt with the complexities of diagnosis, we hope that you share your story and insights.

 
 
 

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