mona de pascua
"Adorable! Thank you, Brtad, for getting his sweet little face and Maria's heart-warming comment to us."
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Stephen Bradford Burke
- Male
- Cape Elizabeth, ME
- United States
- Blog Posts (2)
- Discussions
- Events
- Photos (36)
- Photo Albums (1)
- Videos (1)
Stephen Bradford Burke's Page
Latest Activity
Stephen Bradford Burke commented on Stephen Bradford Burke's photomona de pascua
"This photo of Jose' whose family lives in Spain was sent in by his mother. Jose' is very happy because it's the first time in his life he is able to participate in this activity. In the past he has been on a…"
Stephen Bradford Burke commented on Bill Biermann's blog post Linda Burke - The Picture says it all......need i say more? Thanks Linda"I know how much work you've done Linda....You absolutely deserve the accolades! …"
Gene Billingsley commented on Stephen Bradford Burke's blog post My son Hunter Bradford Burke would be 7 years old today."Your comment painted a beautiful picture of a special memory, Steve."
Zofia commented on Stephen Bradford Burke's blog post My son Hunter Bradford Burke would be 7 years old today."As Lisa said - it is so hard to understand Gods plan for our lives. I'm so very sorry for your loss....."
Profile Information
- Birthday
- July 9
- Do you have a friend or family member diagnosed with aHUS?
- Yes
- Are you medical personnel or an aHUS researcher with an interest in aHUS issues?
- No
- My child ( or myself as a patient) is best described as:
- Factor H (CFH) /Protein (Gene)
Stephen Bradford Burke's Photos
Stephen Bradford Burke's Videos
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Added by Stephen Bradford Burke
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MVI 1879
Added by Stephen Bradford Burke
Stephen Bradford Burke's Blog
My son Hunter Bradford Burke would be 7 years old today.
It's a bright and sunny day today on what would have been Hunter's 7th birthday. If he were still here we would probably be taking a ride down to Bug Lite park to fly kites and watch the boat traffic in Portland harbor. He would sit in the back of our SUV and watch the scenery go by with a big smile on his face as if he had not a care in the world. I think of him and miss him every day and frankly I hope the powers that be would let me see him again when I leave this earth. Life is but a… Continue
Posted on November 1, 2009 at 11:15am — 9 Comments
Scott Woodruff's ride for AHUS and Cancer
Scott Woodruff is my cousins oldest son and lives in the Dana Pt. area of Southern California. I would like to personally and publicly thank him for his efforts in raising monies on behalf of "The Foundation for Children with AHUS"
Recently he rode 100 MILES! on his bike and was able to raise over $1,000.00 dollars for AHUS. I'm sure I speak for all families who have children suffering with AHUS that his extremely generous efforts are much appreciated. Thank You Scott!
Recently he rode 100 MILES! on his bike and was able to raise over $1,000.00 dollars for AHUS. I'm sure I speak for all families who have children suffering with AHUS that his extremely generous efforts are much appreciated. Thank You Scott!
Posted on July 18, 2009 at 5:22pm — 1 Comment
Comment Wall (7 comments)
- At 9:45pm on October 18, 2009,
Cheryl Biermann said… - Hi Brad-thank you for sharing your family's information with the AHUS parents, it has been such a help for some of them and is a hope for the rest of us. Linda did a wonderful job at the conference...thanks again.
- At 12:19pm on September 8, 2009,
Teresa G. Craig said… - Hi Brad. It was great seeing you, Linda and Skyler on Sunday. Such a beautiful day! I don't have any instructions for you, but I see that Linda does. Love, Terry.
- At 12:16pm on September 8, 2009, Teresa G. Craig said…
- Hi Brad. It was great seeing you all on Sunday and enjoying the beautiful day and family time together! I don't have any instructions for you, but I see that Linda does! Love, Terry
- At 12:38am on July 10, 2009,
Linda Burke said… - Howdy! Here's the Honey-do list, Honey! Please update your profile with the new survey questions. Also hit the bottom right of the screen to where you see "badges". After you customize you badge, please import it to your Facebook page to raise awareness. If there's any folks on your Facebook that can put an also put an aHUS badge on their own page- great!
- At 11:44am on June 6, 2009,
Steve Greene said… - Cool beans - hey check this out: I'm adding this comment using my Blackberry. So the site is mobile enabled! Steve
- At 8:14am on June 6, 2009, Steve Greene said…
- Hi Brad -- so glad you joined! I knew you would of course, but I also know you have loads of contacts that you can reach out to to join the site. There are so many people with so much to share --- we can all learn from each other. So now we have a place to meet online! Spread the word ....!
- At 7:53am on June 6, 2009, Stephen Bradford Burke said…
- Wonderful web-site. Thanks so much for putting it together.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
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NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
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