The Atypical HUS Foundation

February 2014 Blog Posts (5)

Grab a Camera and your Friends for a RARE DISEASE DAY photo!

     Join “Handprints Across America”, one of NORD’s events for Feb. 28th, global Rare Disease Day.  Simply gather friends, family, classmates, business associates, your faith family, arts group/team –any group of people who CARE about those who are challenged by a diagnosis of aHUS!

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Added by Linda Burke on February 22, 2014 at 6:00pm — No Comments

aHUS Global Survey

aHUS Global Survey 

     Come share your aHUS issues and concerns – lift up your voice to note the challenges of living with this rare and chronic…

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Added by Linda Burke on February 19, 2014 at 9:00am — 10 Comments

Raise Awareness - You CAN Make a Difference on Feb. 28th!

 

 

Alone we are Rare, together we are strong!  NORD, the USA’s National Organization offers ways to participate in Rare Disease Day – Feb. 28, 2014!

     Let’s see if the aHUS community can host multiple entries with family/school/workplace photos in Handprints Across America!  Look this awareness activity, and check for other ways to…

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Added by Linda Burke on February 15, 2014 at 5:00pm — No Comments

Feb 28th is RARE DISEASE DAY!

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Added by Linda Burke on February 5, 2014 at 10:30am — 1 Comment

How's everyone?

Just wondering how everyone's coping with the cold/flu season.  I've seen a few facebook postings, but nothing too scary, thank goodness!

Added by Cheryl Biermann on February 3, 2014 at 11:14am — 2 Comments

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