Hi, it has been awhile since I've been on this site, does anyone have issues with abdominal pain with HUS? Also is there anyone else that may go to Children's hospital in Aurora, CO?
Hello all. My husband and I have always wanted three children. After our daughter's diagnosis, we feel that a third is out of the question. We have yet to speak with a genetic counsler. I was curious if anyone has any experience with this or know what our chances of having another child with aHUS are??? Any input would be greatly appreciated.
The Foundation for Children with atypical HUS collaborates with other rare disease organizations to help provide information and support to aHUS caregivers, family members, and patients of all ages.
Regional aHUS meetings are a great way to connect and learn! It’s the perfect way to gain insight into this rare disease, and provides a great background/ follow…Continue
Added by Linda Burke on April 8, 2014 at 3:00pm — No Comments
My 19 year old college freshman was sick with what we thought was a stomach virus when he went to his local hospital for dehydration. After blood tests revealed acute kidney failure as well as cardiac distress, he was moved to ICU. We had him transferred to a larger hospital. The doctors suspected HUS but were unsure if it was aHUS. We immediately began plasma exchange and dialysis. After two weeks of waiting our genetic test results showed aHUS. Our doctor recommended a transfer to…Continue
My 6 yr old grandson was diagnosed with aHUS about 3 weeks ago. Should we be seeking a second opinion?