The Atypical HUS Foundation

May 2016 Blog Posts (4)

24 September 2016 is international aHUS Awareness Day.

24 September 2016 is international aHUS Awareness Day.

     This week the aHUS Alliance has announced the theme for the 2016 aHUS Awareness Day as 'Rising above aHUS', with an advocacy campaign symbol of a red balloon to unite messages worldwide.  There are many common concerns that affect aHUS patients regardless of nation, culture, or language such as:  the need for quick and accurate diagnosis, access to treatment and healthcare…

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Added by Linda Burke on May 31, 2016 at 9:34am — No Comments

Shocking!!! Just 6 Months of Soliris for Our Friends in Ontario, Canada on Dialysis!!! Use Your Facebook Skills to Help!

Recently, Health Minister Dr. Eric Hoskins of Ontario, Canada announced that Soliris would finally be made available to those on dialysis and in need of a kidney transplant.  This would be good news except that these patients will get a maximum of 6 months of…

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Added by Jeff Schmidt on May 25, 2016 at 7:54pm — 3 Comments

aHUS POLL WEBINAR - 21 JUNE 2016

     The aHUS Alliance is pleased to announce that RareConnect will offer a webinar on 21 June at 11 am EST, with aHUS expert Dr. Christoph Licht to present analysis of the 2016 aHUS survey results. The aHUS global survey closed 15 April with 233 responses from 23 countries, responding in 6 languages.

Register here: …

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Added by Linda Burke on May 21, 2016 at 1:17am — No Comments

Only 6 Months of Soliris for Dialysis Patients in Ontario, Canada. Let's Do Something About It!

In February, 2015, the Ontario government announced that it would provide interim funding for Soliris for aHUS patients who meet “defined clinical criteria”.  This was great news for those who were new patients with aHUS.  But those…

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Added by Jeff Schmidt on May 2, 2016 at 7:00pm — No Comments

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