Nathan and his friend, carry the Cardinal Glennon Banner which includes names of all the children being treated with some form of kidney disease. This was the third walk in St. Louis, it was held in St. Louis University's Park which includes a 1 mile path inside the park. The park was wall to wall people. Representatives of dialysis units from various…Continue
Well, I've been on summer vacation now for about a month-2months now and I've been mainly sitting at home, catching up on some sleep and reading my favorite book, "Eclipse." I had a dance recital which we well and then I paeticipated in the kidney walk, which went well even though it rained, I managed to walk the entire thing with a very close friend of mine at my side.
I then went to a patient education meeting as a patient representative, which in return I got roped into…Continue
Hey there everyone - just got back from a LONG clinic today. For the #'s folks here we go - BUN is down to 52, creatinine is down to 9.5, Potassium is down to 4.3, Calcium is steady at 9.8, HCT and HGB are still low at 9.3 and 26, and platlets are steady at 225. The big #'s news is his phosphorus - which had been giving us fits for awhile (last month is was 11.6 and this needs they…
My little man turned 2 today. It funny how his birthday takes on such a huge meaning for me. I think this is because we were not sure if he would make it to his 1st bday let alone 2nd. I find myself feeling so protective of this day and dont want to share it with anyone else - to me this day is all about Ash. These feelings have come up because my sister in law is due to have her baby and i have been petrified that she would have her baby on the same day as Ash's bday. I know…Continue