The Atypical HUS Foundation

June 2016 Blog Posts (2)

Meet This Courageous Family Ready to Leave Their Country To Save Their Young Son with aHUS







Here is the story of an amazing and courageous family from India.  Deepika and Anil Jaiswal have a young son Aadhyan who has had aHUS since he was 1 year old.  He is now close to 6.  But what’s different for Aadhyan, is that unlike those in the United States (and…

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Added by Jeff Schmidt on June 21, 2016 at 7:07pm — No Comments

aHUS Global Site launches at www.ahusallianceaction.org

     The aHUS Alliance of patient organizations announced on 28 May 2016 the launch of an aHUS global website that will connect, inform and and encourage collaboration among stakeholders within the global aHUS community, for the benefit of all those affected by aHUS.   Visit www.ahusallianceaction.org to view this portal of worldwide aHUS connectivity.

     While national aHUS advocacy groups remain paramount for…

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Added by Linda Burke on June 6, 2016 at 3:04pm — No Comments

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