The Atypical HUS Foundation

July 2016 Blog Posts (2)

Mimi - per headaches.... I've been diagnosed since Feb 2015, and too had headaches for the first 6 months of treatment after I got my infusion.  I also take daily antibiotics for chronic infections (…

Mimi - per headaches....

I've been diagnosed since Feb 2015, and too had headaches for the first 6 months of treatment after I got my infusion.  I also take daily antibiotics for chronic infections (I take cipro for pseudomonas).  When I first started with the headaches, I took Tramdol before my IV.  After awhile, decreased to the point I no longer need it (about 6 months total).  Do keep in mind, I am 60, so may not apply in your case.  I only had the headaches the day /evening after…

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Added by Judy Trynosky on July 18, 2016 at 8:40pm — 1 Comment

Headaches

Hello,

I hope I am posting this correctly.  My 10 year old daughter was diagnosed this year with aHUS.  She was released from hospital at the end of May.  She is currently taking the bi-weekly dose of Soliris and her lab work looks good.  However last week she was diagnosed with strep, even though she's on the small dosage of penicillin each day.  The strep symptoms are almost gone, but she is complaining of chronic headaches.  Is anyone else experiencing chronic headaches, and have…

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Added by Madeleine Lekas on July 17, 2016 at 8:28pm — 1 Comment

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