The Atypical HUS Foundation

August 2013 Blog Posts (5)

Crazy Kidney Story that is local for me

http://gma.yahoo.com/ohio-transplant-victim-says-hospital-wasted-brothers-trashed-143207531--abc-news-health.html?vp=1

Read this story.... I don't know what type of kidney disease that she has, but it's absolutely terrifying that it could actually happen!

Added by Lisa Stockdale on August 31, 2013 at 11:02am — No Comments

Come to Orlando Sept. 20-21st

There's still time - REGISTER NOW!! 

NORD's 2nd aHUS Regional Meeting will be held on Sept. 20-21st at the Renaissance Sea World in Orlando, Florida.  There will be an September 20th dinner (7 to 9 pm) for attendees that Friday evening with an opportunity to connect with other aHUS patients and their…

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Added by Linda Burke on August 26, 2013 at 12:30am — No Comments

Looking for doctors

I am just curious where any adults with aHUS have received their medical treatment.  I think I would like to leave Montana to get another opinion, but I don't know where to go.  Thanks for any info you can give me!

Added by Kristen Bruner on August 5, 2013 at 6:02pm — 5 Comments

aHUS Regional Meetings - Sept through Dec 2013

We are pleased to announce that 2 rare disease organizations are hosting aHUS regional meetings this fall.  NORD is hosting a Sept 20-21 meeting in Orlando, with another chance to meet and learn likely to be in San Diego during the first part of December.  (NORD is the National Organization of Rare Disorders at www.rarediseases.org)

Global Genes will be hosting an aHUS Regional Meeting in Houston Oct. 25-26 with another opportunity to meet…

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Added by Linda Burke on August 4, 2013 at 9:26am — 1 Comment

stomache pains

my son dean has been I think stomache it is hard to tell for sure because he is 13 months old and he I can only guess what he is doing he will cry for a hour and half holding on to his stomache and then if you sit him on his butt he will scream bloody murder and if you lay him on his back he will do the same thing the only thing that will not make him cry when he is doing it is hold him up straight and if you try to give a bottle he will reject it and he will not eat he does not have gas…

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Added by ronalda anastasio on August 1, 2013 at 9:35pm — 11 Comments

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