The Atypical HUS Foundation

October 2014 Blog Posts (7)

Iowa thoughts, research highlights

I had the good fortune to attend the Iowa conference this past weekend with my mother. It was such a great success, I hardly know where to begin! The hotel staff were very helpful and welcoming the multiple times I contacted them regarding shipping dialysis supplies, and the complimentary room was truly appreciated! I was rather travel-worn by the time I arrived (though others have better stories to tell), and unfortunately I missed the meet-and-greet. I would have benefitted from a little…

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Added by Grace on October 29, 2014 at 10:43pm — 10 Comments

2014 Family Conference in Iowa

I am still in awe of the effort put forth to host the Family Conference in Iowa.  My sincere appreciation to all who made this event a realization.  The information we anticipate from continued research efforts at the University of Iowa will shed more light on this disease that makes us a family.  I am very excited for what the future holds!

Added by Crystal Ferreira on October 29, 2014 at 5:26pm — 2 Comments

Back to reality - thanks to everyone for coming!!!

Hi everyone - just wanted to reiterate how much we appreciate all of you making the huge effort to travel to the University of Iowa this past weekend for the Conference!  I can't tell you how much I enjoyed getting to meet as many of you as I could and hate that I know I missed some folks - you'll just have to come back!  Again - thanks so much and we hope you felt like it was well worth your time to make the trip with all the info provided.  As Linda said - join this webpage and let your…

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Added by Phyllis Ann Talbot on October 27, 2014 at 1:00pm — 2 Comments

Iowa aHUS Mtg. Starts Tomorrow - What's NEW?

     It’s HERE!  The 2014 aHUS Family Conference at the University of Iowa on October 24-26th begins tomorrow , and we all look forward to an interesting meeting.  Wondering how to meet other patients and their families?  Come to the NORD Meet and Greet from 4-6pm – signs will direct you from the Sheraton lobby.

 …

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Added by Linda Burke on October 23, 2014 at 4:30pm — 1 Comment

Sheraton Hotel, Iowa Cty, Iowa - 3193374850

The Sheraton offers upon request refrigerators and cribs at no extra charge. For any other questions about your rooms, please call the number above. The staff is friendly and helpful.

Added by Cheryl Biermann on October 18, 2014 at 11:40am — No Comments

I'm back, and I've been busy!

Hello Everyone!

I am happy to be back on the website.  After my second kidney transplant on March 7, 2013, I have been working my tail off trying to advocate for kidney disease, aHUS, and other chronic illnesses. 

Currently, the play I wrote and directed, Dancing in the Storm, is performing at Redtwist Theater in Chicago, IL.  It is based on my own blog about…

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Added by Tonia Sina Ellis on October 14, 2014 at 11:30pm — No Comments

ASHUA - Innovative Members of the aHUS Global Alliance

     More great innovations from the aHUS community in Spain!   After last year’s release of a Spanish language iBook for aHUS patients and those who support or care for them, ASHUA has made available an Emergency Medical Bracelet specifically…

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Added by Linda Burke on October 13, 2014 at 11:30am — No Comments

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