The Atypical HUS Foundation

Madeleine Lekas's Blog (2)

Immune System Boosters

Hello,

Has anyone taking Soliris found any typical methods of immune boosting, ie avoiding gluten, helpful?  My 11 year old daughter is on a bi-weekly dose of Soliris and spikes fevers intermittently which then require heavy doses of antibiotics along with a trip to the hospital.  I hate to cause her any more discomfort, but I was wondering if any one had found any homeopathic ways to boost the immune system while on Soliris.

Thanks,

Mimi

Added by Madeleine Lekas on September 11, 2016 at 8:04pm — 4 Comments

Headaches

Hello,

I hope I am posting this correctly.  My 10 year old daughter was diagnosed this year with aHUS.  She was released from hospital at the end of May.  She is currently taking the bi-weekly dose of Soliris and her lab work looks good.  However last week she was diagnosed with strep, even though she's on the small dosage of penicillin each day.  The strep symptoms are almost gone, but she is complaining of chronic headaches.  Is anyone else experiencing chronic headaches, and have…

Continue

Added by Madeleine Lekas on July 17, 2016 at 8:28pm — 1 Comment

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