2011 Parent Conference - Save the Date
SAVE THE DATE:
The University of Iowa has graciously volunteered to host the 3rd "Atypical HUS Parent Conference" . This is a great way to meet the top medical Professionals while socializing with parents at the same time. Here are the specifics:
Friday, Oct 7th Early Arrival 7:00pm Meet and Greet
Dinner sponsored by the Foundation
Saturday, Oct 8th The Confererence at the University of
Iowa: (All Meals Provided)
Sunday, Oct 9th Departure
Note: you may elect to attend any portion: No cost to attend the conference, and Friday eve meal and all saturday meals are covered. We will try to obtain a special rates at local hotels.
Details to follow
email any questions to Bill Biermann bbiermann@premier-ks.com
Views: 4
Comment
-
Comment by Phyllis Ann Talbot on June 14, 2011 at 8:39pm -
For anyone from Georgia(and possibly others) it was ALOT cheaper for us to fly into Moline, IL and renting a car thAn flying into any of the Iowa airports.....just an option. Only about an hour drive to Iowa City
-
Comment by Linda Burke on June 14, 2011 at 12:18pm -
Hi Bill,
For those aHUS patients/families who need to travel, what airport is recommended for a destination closest to the University of Iowa?
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
************************
NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
Badge
© 2012 Created by ALPHA MARKETING.
Powered by
You need to be a member of The Foundation for Children with Atypical HUS to add comments!
Join The Foundation for Children with Atypical HUS