The Atypical HUS Foundation

2016 aHUS Family Conference - Register for the Nov. 4-6th Mtg

     The Atypical HUS Foundation is pleased to announce that the aHUS Family Conference**, in conjunction with The University of Iowa, will be held in Iowa City, Iowa on November 4-6, 2016 at the Sheraton Iowa City Hotel.  Registration is limited, FMI see details at the Eventbrite registration site:   http://ow.ly/4n2v06 .  Questions about aHUS Family Conference?   There is a direct way to “Contact the Organizer” and get your questions answered.   At the end of the Eventbrite event description is an envelope icon (just above the map).  Click “Contact” and send a message to The Atypical HUS Foundation.  An Events listing for The Atypical HUS Foundation’s aHUS Family Conference in Iowa is located at: http://atypicalhus.ning.com/events/ahus-family-conference-iowa

 

     From the University of Iowa website: (http://www.medicine.uiowa.edu/morl/events/)

“This collaborative effort will bring you the latest medical updates regarding atypical HUS (aHUS).  The aHUS clinicians and research teams at the University of Iowa will provide an entire day of aHUS medical and research information on Saturday, November 5th.  You will learn about the latest in aHUS diagnosis, treatment, transplantion and genetics, and the basics of "What is complement?" and How to manage chronic illness".

The weekend offers a unique opportunity for patients and families living with aHUS to meet one another and to discuss common issues.  The conference will conclude with a roundtable discussion where patients and families share stories and tips about living with aHUS.  Please contact Amy Weaver at amy-weaver@uiowa.edu with any questions about the conference.”

 

     Currently representatives from the aHUS Alliance, an umbrella group of 15 nations with aHUS patient groups, are forming plans to attend the Iowa conference and to additionally hold a global advocacy meeting.

**Portions of this event are made possible through a generous grant from Alexion Pharmaceuticals, Inc.

Looking for aHUS information closer to home?  

Global Genes offers regional aHUS Meetups across America, to include one physician presentation among other great features.  Check out their aHUS events at 

https://globalgenes.org/ahus/

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