Mimi - per headaches....
I've been diagnosed since Feb 2015, and too had headaches for the first 6 months of treatment after I got my infusion. I also take daily antibiotics for chronic infections (I take cipro for pseudomonas). When I first started with the headaches, I took Tramdol before my IV. After awhile, decreased to the point I no longer need it (about 6 months total). Do keep in mind, I am 60, so may not apply in your case. I only had the headaches the day /evening after my treatment, not daily. Best I can offer, but I would think younger one might be more sensitive to side effects. Good question for the Denver conferece, will you be there?