5 Years
5 years ago today I took an 18 mth old Hyde (with 3 yr old Ruth in tow) to the dr. for what I thought was a UTI. We were sent directly to the hospital and so began our nightmare known as AHUS. It's weird that we have such a line in the sand day. Realistically Hyde had stuff going on for probably 6 mths or so before then - but until this day 5 yrs ago - we were 'normal'. I would do ANYTHING to take away this whole experience and all Hyde has had to suffer. But since that's not going to happen, I'm SO very thankful for all the love, support, and information we've gotten from our AHUS family all over the world. We don't know exactly what the future holds, but we are more positive than we were a few months into this journey and Hyde is living as normal of a life as we could hope. Thanks to everyone for the prayers and advice. We honestly wouldn't have made it this far without all of you!
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Comment
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Comment by Cheryl Biermann on January 29, 2013 at 8:31am -
We need a t shirt for our families, I survived aHUS ! Hyde is a blessed kid to have a great support system and family.
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Comment by Donna Kolp on January 28, 2013 at 10:25pm -
Phyllis,
It's such a wonderful thing when you can look back and see that you have survived. Prayers will always be there for Hyde, and for your family. I personally appreciate all you have done to bring awareness of aHUS to the world! Thank you!
Donna :)
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It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
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