501(c) (3) - contributing to the aHUS Foundation
Question, probably for Bill & Cheryl....It's time again for my company's United Way campaign. Last year I designated my contribution to the aTypical HUS Foundation as a 501(c)(3) tax-exempt organization. I obviously want to continue to do so and encourage others to as well....my concern is - is the money really getting to the foundation?!
Views: 38
Comment
-
Comment by Cheryl Biermann on October 15, 2011 at 10:32pm -
That is such awsome news, we will be on the lookout!
-
Comment by Dana M Simone on October 14, 2011 at 3:16pm -
It's true - most people are not aware that they can actually donate on behalf of a cause they are passionate about; the UW typically doesn't encourage it, as they prefer that people contribute directly to the communities in which they live and work. That said, donating to the Foundation for Children with Atypical HUS through the UW is convenient and easy, particularly via payroll deduction. Let's encourage family, friends and co-workers to make this year's UW donation to our foundation!
It's easy - check the option to designate your contribution to another 501(c)(3) agency, and enter the following: Foundation for Children with Atypical HUS, c/o Bill Biermann, 7018 Forest Oak Dr., Barnhart, MO 63012
I've already had a co-worker ask me for the address, so expect at least two donations so far from National Grid through the UW Massachusetts Bay & Merrimack Valley!
-
Comment by Linda Burke on October 13, 2011 at 11:54pm -
Thanks, Dana - we appreciate your contributions! I'll bet that many people aren't aware of this option for their company's United Way campaign, so this would be a great topic for a blog.... (hint, hint, readers...)
-
Comment by Cheryl Biermann on October 12, 2011 at 5:22pm
-
YES! When we get checks/money orders we don't always know who insitgated the donation...we do send thank yous and receipts to the contributor, however. It is a good idea to let whichever company/charity donating know that yetou would like to be notified when the check is sent, just to make sure, you can follow up with us also, make sure we have actually received it. I haven't run into anyone saying a donation was made and not having received it, but for you own piece of mind, you might want to see if that can be done.
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
************************
NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
Badge
© 2012 Created by ALPHA MARKETING.
Powered by
You need to be a member of The Foundation for Children with Atypical HUS to add comments!
Join The Foundation for Children with Atypical HUS