(Updated August 9, 2016 - new coloring page added)
The second annual aHUS Awareness Day is coming up fast. The world will join together on September 24, 2016 to raise awareness for aHUS. The global theme for aHUS Awareness Day this year is ‘Rise above aHUS’.
The global aHUS Alliance (the umbrella organization of Atypical Hemolytic Uremic Syndrome Patient Organizations from around the world) has chosen a red balloon as the international symbol of ‘rising above aHUS’. The Alliance would love to have the kids participate in a video project that could be shared globally on September 24th. What do you need to do? Choose among 4 coloring pages designed by Carly Schmidt, who is an aHUS advocate whose family is affected by aHUS. Patients, family members, and aHUS caregivers can use the coloring pages to simply color, to draw additional images or elements, or to embellish the coloring page with decorations such as stickers or scrapbook elements. Scan your creation or take a picture of it (rotate camera sideways to cover entire screen with the coloring page) and email it to project organizer Jeff Schmidt ( email@example.com ) along with a photo of the aHUS patient, their name and country. Entries then will be included in the collaborative product, a video/slideshow (see examples below).
But wait! You don’t have to be a child to color or decorate one of these coloring pages- all ages are welcome to participate! And aHUS affects not just the patient, but also the whole family so children and siblings of those living with aHUS are also encouraged to join in. Patient experiences and aHUS journeys are varied, so those who are creative are welcome to paint/draw/sketch your entry to illustrate what 'Rising above aHUS' means to you!
Please don't stress about it, there is no right or wrong way to color/decorate!
We welcome everyone from our global community to join in this project.
Submissions are due by 9/11 to allow time to put this together, but the earlier you can turn in your entry the better!
For a copy of the coloring pages, or if you have questions, please email: firstname.lastname@example.org
Scanned coloring page:
Photo of coloring page:
Scanned coloring page:
Scanned coloring page (added message):