24 September 2016 will mark the 2nd annual world aHUS Awareness Day. Patient organizations from around the world, in collaboration as the aHUS Alliance, have issued a press release providing details within an PRNnewswire,
From the 2016 August 24 Press Release:
"The aHUS Alliance invites all stakeholders to join together to promote visibility and to highlight insights and issues specific to aHUS. Information and resources for aHUS Awareness Day will be available online at http://www.ahusallianceaction.org
There are many common concerns that affect aHUS patients regardless of nation, culture, or language such as: the need for quick and accurate diagnosis, access to treatment and healthcare options, shared data and information among global aHUS researchers, increased physician education, and advancement in ultra-orphan drug therapies.
Along with patients and carers sharing personal stories about meeting the challenges of aHUS, the aHUS Alliance encourages medical and research teams, pharma, healthcare professionals, geneticists and policy makers to share how they or their organisation's innovations are 'Rising above aHUS' to improve patient outcomes."
Follow aHUS Awareness Day on Twitter: @aHUSAllianceAct and @aHUS24Sept
Tag your aHUS Awareness Day efforts and events: #aHUS24Sept and #SHUa24Sept
Info and Resources:
Website: www.aHUSallianceAction.org Contact the aHUS Alliance at: info@aHUSAllianceAction.org
2016 aHUS Awareness Day - Press release from the aHUS Alliance: http://ow.ly/lGoQ303xaXW
Results from the 2016 aHUS Global Poll (23 nations): http://ow.ly/cngO303mD0D
Participate with the aHUS Art Project (Deadline is 11 Sept for Entries): http://ow.ly/DZ1m303xgzL
aHUS Day- Images http://ow.ly/eTds303xgjf