The Atypical HUS Foundation

aHUS Awareness Day, September 24, 2015 Kids Project

Hey Americans!  We have another project for the first ever aHUS Awareness Day on September 24, 2015.  Alyssa Deffenbaugh and I have been working together through the Atypical HUS Foundation on ideas for this special day.

For this project, Alyssa came up with the brilliant idea of getting the kids involved.  She would like them to draw a picture that shows what it means to be healthy or maybe how they feel about having aHUS.  It could be a picture about mom, dad, sister, or brother, whoever they are close to that has aHUS.  There’s no right or wrong here.

And for those kids who are intimidated by drawing a picture, or are too young, we will provide some aHUS Awareness Day coloring pages (created by Carly Schmidt) that they can color.  And then on September 24 (or maybe during that week) you could post your child’s picture/drawing on Facebook, Twitter, Instagram or whatever social media to help raise awareness for aHUS.  I think it’s safe to say that people who see us post all the time may skip over a post but they won’t if it’s a picture from your child!

And for those who teach young children, here's an example of what you can do to spread awareness.  Erica Schmidt, who teaches 2 year olds, will be having her class color the coloring pages so her kids and their parents can learn a little about the disease that Miss Erica has!

Get the people around you involved!  The more the merrier!  Raise awareness!  For those who would like a copy of the coloring pages, please email Alyssa at

Alyssa has also managed to get permission from the Foundation to offer a free children's shirt to any child that participates!  We will put all participants names in a random drawing and the winner will receive a $100.00 savings bond.

Here's just one of the coloring pages:

Those still interested in participating in the Airmail Letter video/slideshow, go to this link to see how you can be involved.

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Comment by Linda Burke on September 2, 2015 at 11:35pm

Creative - inclusive - meaningful.....and FUN!  Thanks so much for a wonderful project that offers insight into aHUS.



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