The Atypical HUS Foundation

aHUS Awareness Day, September 24, 2015 Outreach Project

Americans, by now you realize the first ever aHUS Awareness Day on September 24, 2015 is fast approaching.  We have another project for this special day (or any day you’re available) that we’d like to see everyone get involved in.


For this project, Alyssa Deffenbaugh and I would like everyone to take the aHUS fact sheet provided by the aHUS Alliance and find at least one person that you can give it to.  This person or persons could be a politician, media person (TV, newspaper, etc), doctor, nurse, teacher, co-worker, family member, friend, or even your next door neighbor.  The idea is to spread awareness of aHUS to someone who doesn't know about aHUS.


The aHUS Alliance worked hard to finalize this aHUS fact sheet that will be available to all countries.  Special thanks to Linda Burke (US), Michael and Margriet Eyegenraam (Canada), and Kamal Shah (India) for their efforts.  If you are interested in reaching out to people by taking this fact sheet and sharing it, those with last names that start with A – M, please send an email to Alyssa at   Those with last names that start with N – Z, please send me an email at


We will send you two files, one with aHUS facts that you can pass out (can be printed on the front and back of one sheet of paper), the other contains those facts plus some other key information that you may want to keep.

Update:  You can get the aHUS fact sheets right here!


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Comment by Linda Burke on September 24, 2015 at 1:19am

aHUS Alliance Fact sheets are also available on a separate page on this site, just email this link to friends and family:

Comment by Jeff Schmidt on September 18, 2015 at 11:46pm

Thanks!  And Amen to that Margriet!

Comment by Margriet Eygenraam on September 18, 2015 at 7:15pm

Great idea!!!

I can think of many people to give this fact sheet to as most people have no idea what aHUS is. 

The more people we can educate about this horrible disease the better it is. 



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