Americans, by now you realize the first ever aHUS Awareness Day on September 24, 2015 is fast approaching. We have another project for this special day (or any day you’re available) that we’d like to see everyone get involved in.
For this project, Alyssa Deffenbaugh and I would like everyone to take the aHUS fact sheet provided by the aHUS Alliance and find at least one person that you can give it to. This person or persons could be a politician, media person (TV, newspaper, etc), doctor, nurse, teacher, co-worker, family member, friend, or even your next door neighbor. The idea is to spread awareness of aHUS to someone who doesn't know about aHUS.
The aHUS Alliance worked hard to finalize this aHUS fact sheet that will be available to all countries. Special thanks to Linda Burke (US), Michael and Margriet Eyegenraam (Canada), and Kamal Shah (India) for their efforts. If you are interested in reaching out to people by taking this fact sheet and sharing it, those with last names that start with A – M, please send an email to Alyssa at firstname.lastname@example.org. Those with last names that start with N – Z, please send me an email at email@example.com.
We will send you two files, one with aHUS facts that you can pass out (can be printed on the front and back of one sheet of paper), the other contains those facts plus some other key information that you may want to keep.
Update: You can get the aHUS fact sheets right here!