The Atypical HUS Foundation

aHUS Global Survey – Participate Today, ends 15 April

2 DAYS LEFT – All aHUS adult patients and caregivers of pediatric aHUS patients worldwide are invited to participate in the

2016 global aHUS poll at http://ow.ly/YR8JK, survey available in 6 languages.

Ends 15 April 2016

     All aHUS adult patients and caregivers of pediatric aHUS patients worldwide are invited to participate in the 2016 global aHUS poll at http://ow.ly/YR8JK.   With 2 days left to respond, the survey is open through 15 April.  Patient and caregiver poll responses can provide better understanding and insights into aHUS diagnosis, treatment, and medical care.  Patient needs should be the center of medical care and decisions, and the patient’s perspective is important in a holistic medical care plan. 

     Data from this 2016 survey will offer insight into how patients might more fully engage with, or become informed about opportunities and advancements in aHUS research, studies, clinical trials, and aHUS registry efforts.

     Gathering information on the aHUS patient experience, this 2016 poll provides a way for the aHUS community worldwide to express concerns and give insight into the challenges of aHUS.   The survey is available in 6 languages: ENG, ES, FR, IT, RUS, and Japanese.

 

Follow 2016 poll updates and results on Twitter:   @aHUSallianceAct

Take the 2016 global Survey:  http://www.ahusallianceaction.org/survey/

FMI, and interim Survey Results:  https://www.rareconnect.org/en/community/atypical-hemolytic-uremic-...

Thanks to RareConnect, an initiative of EURORDIS

for their support of this poll and the global aHUS community on RareConnect.

This content appeared first on RareConnect.

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