The Atypical HUS Foundation

I hope that everyone had a great Thanksgiving. My Thanksgiving was awesome! I got to meet my 3 month old cousin Alexis Channing :) She's so precious; didn't get to hold her, because A. I wasn't feeling too great (didn't want to give the little one my germs) B. everyone was hogging her My cousin Joey and his wife are her mom and dad, and I can tell that they are very proud of their little girl. Joey often sees me, and says "WOW you're 21 already?" He oftens goes back to the time when he used to babysit for my sister and I, this often makes me feel embarrassed at times, but very proud, because he had the practice for when he eventually had Alexis (besides taking care of his brother and sisters). It's very hard for Joey to be away in Georgia, because he often worries about me as well as everyone who lives here in Buffalo NY. It's understandable, because I know how much he wants to see me get a kidney, he was even asking me my blood type, I could never truly accept a kidney from him, now that he has a family of his own, it wouldn't seem right. I have gotten offers for donations, which is SO GREAT, now that I am being worked up, but it's a long long long treck ahead until I can actually accept those offers. I have now realized that I am thankful to be alive, even though there is no cure for this disease yet, I'm thankful to have made it this far, not ever knowing what will happen in the future, living life spontaneously often has its perks I guess.

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Comment by Jessica Olivia Frysz on December 13, 2009 at 1:31am
oh I'm feeling better, not totally 100%
Comment by Grace on December 3, 2009 at 6:25pm
That's great you have a wonderful and supportive family including a cute little new cousin! I hope you're feeling better now.
Comment by Bill Biermann on November 29, 2009 at 11:33am
What an awsome family and friends you have,sometimes it's the little things that make us realize how special the gift of life is; so glad your family reminded you of what you already knew. Alexis sounds charming!



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