The Atypical HUS Foundation

Today, Brandi turned 12. Oh, how quickly the time flies. If no one new Brandi is a twin, and Brittany doesn't show any signs of having AypicalHUS, which we haven't had her tested yet, but plan on in the future. My babies are growing fast. Brandi has been in good spirits, and things just don't bother her, she takes everything with a smile on her face. Am so thankful for that. That this hasn't changed her personality is a blessing. We are still hopeful to do home dialysis, but she continues to lose blood. On Saturday, had to have 2 units. The doctors here at UHIC are trying to take Brandi off of her plasma infusions so we can do treatments closer to home, but am not sure that is going to work out. Just will have to wait and see......

Views: 16

Comment

You need to be a member of The Atypical HUS Foundation to add comments!

Join The Atypical HUS Foundation

Comment by Cheryl Biermann on November 10, 2009 at 11:04pm
Good to hear from you Kathy. Don't worry if you don't get to that spot of not needing infusions, some of us never got there either, at least until the kidneys were completely shut down-no urine output at all. It sure would be nice if you were able to do treatements closer to home though. Give Brandi and Brittany both a big birthday hug from the Biermanns. Hope it was a great one!
Comment by Linda Burke on November 10, 2009 at 10:21pm
Hi Kathy!
Wow, how is it possible that our children grow up so quickly?!! Happy double birthday to Brandi and Brittany - did you guys have the opportunity for a fun birthday outing? We'd love to see some birthday photos posted of the girls when you get a chance. So glad we had a chance to meet at the U of Iowa conference - the aHUS team there is terrific, so it's nice to know that your family is in good hands with them. We're looking forward to hearing your family's story when you can catch your breath! Best wishes, Linda
Comment by Svetlana Finley on November 10, 2009 at 7:02pm
Happy Birthday Brandi!!!
When Anna was on plasma infusions, she kept loosing blood, then they switched to plasma exchange, that works better for her. I hope pretty soon her blood will stop going down and u will be able do dialysis home.
When was she first diagnose?
Comment by Amy Swarbrick on November 10, 2009 at 6:18pm
Big Happy Birthday to your girls:) Hope things start to get better for Brandi very, very soon. I'll keep my fingers crossed she will be able to do home dialysis soon.....wouldn't that be easier.

Badge

Loading…

© 2018   Created by Deborah Lewis.   Powered by

Badges  |  Report an Issue  |  Terms of Service