It has been a little over a month since Brandi's transplant and she is doing well. We haven't had anything major accur since being released from the hospital. We have been making weekly trips to University of Iowa Hospital and Clinics, with one week being a check up with labs and the following week labs and infusion of Soliris. Brandi hasn't had any ill effects from the treatment and seems to tolerate them well. She was going to resume going to school on the 15th, but Dr. Brophy decided in the end that she should wait until after Thanksgiving before resuming classes. Think she's getting tired of all the quality time that she and mom has, but at times it doesn't seem anymore or less then when she was on dialysis. She has been a trooper through it all and am so proud of her. We all can certainly learn a lot from our children and how strong they are and how they in turn make us stronger individuals.
Thank you all for continued support of Brandi and our family,
Kathy
By the way, we did finally meet our donor, who was a complete stranger that just one day decided she wanted to donate one of her kidney's and in particular to a child. Brandi was the lucky one. What a truely wonderful person our Tracy is, she has quickly became a family member, whether she likes it or not. But thankfully she does and we have stayed in close contact. Just wanted to make a note.
Comment
Comment by Kerri Grey on November 13, 2010 at 5:39am
Comment by Linda Burke on November 11, 2010 at 11:54pm
Comment by Cheryl Biermann on November 11, 2010 at 6:36pm WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
************************
NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

© 2012 Created by ALPHA MARKETING.
Powered by
You need to be a member of The Foundation for Children with Atypical HUS to add comments!
Join The Foundation for Children with Atypical HUS