Broken bones and aHUS

[Lisa Goble]

So...here's the latest....Lydia has broken her fifth metatarsal bone in her foot. Of course, as an over-achiever;)' it's snapped all the way thru a little near the base of the bone about mid-way down the side of her foot. And here's the newest thing I learned about this disease....people with renal issues usually tend to heal slower than people without. Great. Fabulous. Something else to "wait and see" on. There seems to be a diff in opinion whether or not to cast or operate with some screws. Apparently the placement of her break is somewhat tricky...does that surprise me..??..not at all!! They say it's a 6-8 week heal, maybe longer with surgery. Currently she is in cast with more films in three weeks. Her travel softball begins in 9 days...I am her coach and she is my first baseman. She is as "traumatized as an 11 yr old girl can get in the fact that not only was she "chosen" for this disease...but here it is SLOWING her down AGAIN...... Question.....do u have any experience with the broken bone thing...is the healing slower. And most importantly....could it be a trigger? And.....screws in bones....in a aHUS kid? Thank you for praying for my child....

[Lisa Goble]

So....the update on the foot is....STILL BROKEN!:(. Crazy, I know, but I was thinking we could just be done early....(since we're "over-achievers" and all)....but, nope. We re-X-ray on feb 17 (that will be SIX weeks). We have a few xersizes to work on, most of which are not painful, her cast is a walking cast and in very controlled environments, she can start to put a little weight on it. Her ortho-doc informed her she will not have permission to play in her first spring tourney (she plays travel softball, and I coach) in march, but should make the April one as long as we can avoid surgery=). I am just thankful she is well enough and healthy enough to play, each day is a gift=)

[Cheryl Biermann]

Lisa,  Any updates on Lyssa's foot?

[Cheryl Biermann]

Oh, Alyssa...she sounds like me when I was that age, a first baseman with a passion for the game!  Here's the little I know on this subject. 

 

You should have her doctors consult the surgeons, they should have a plan in place BEFORE surgery.  Have her labs done first and alert the nephrology team it needs to follow this surgery.  There is always a concern that excessive bleeding may occur.  I also know, from my other son, that blood is produced in the upper leg bone, so this may have some impact on triggering things also, I just don't know.  So, as always, whenever there is an issue, labs, nephrology consulatation and then action.

[Linda Burke]

Lyd's strong spirit and her family's love will work wonders....so sorry to hear your vibrant daughter has to deal with this.  One of the toughest things is probably having Lyd feel that she's let down her softball team (and coach) with this injury.

  While I can't remark on the 'broken bones' issue, it seems that stomach viruses historically have been our family's specific 'trigger possiblility" rather than the normal childhood woes.  Things like RSV, strep throat, upper respiratory illnesses and the like have passed uneventfully (that doesn't mean that I wasn't worried sick, though!)  May our prayers of healing and support reach you, warming your heart and uplifting you during this time of uncertainty and worry.