Checkups
Views: 5
Comment
-
Comment by Phyllis Ann Talbot on July 6, 2010 at 7:27am -
Yippee!! that sounds so good and I can totally relate on the fighting!! (even though mine's a girl and a boy - doesn't seem to be any better!)
-
Comment by Linda Burke on July 6, 2010 at 12:11am -
Hi Wendy,
Love hearing that Tristan is doing well....hooray for good labs! Skyler is "cheating' his way through the probiotic world with a yummy little smoothie from Whole Foods, Lifeway (www.lifeway.net ) Organic "ProBugs" is a whole milk kefir that tastes so good and is packaged so cute that even Skyler finishes the whole "Goo-Berry Pie" drink with a smile. Nice to just be concerned about brotherly fighting, isn't it! ;-D
-
Comment by Cheryl Biermann on July 5, 2010 at 11:46pm -
Wow! This is really fantastic! Go Tristan!
-
Comment by Theresa Pereira on July 5, 2010 at 4:47pm
-
Glad to hear things are going well.
Olivia is on a probiotic drink as well once a day (http://www.danactive.com/danactive_faq.html)
basically we start her with a multi vitamin in the morn
probiotic drink at 3:30
iron suppliment at 5:30
acai berry juice (organic 1/2 ounce only) at night
Have a great healthy summer!!
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
************************
NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Did you know...
• • • • • • • • • • • •
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
more factoids...
Help us fight the battle
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com
Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
19 Olde Colony Lane
Cape Elizabeth, ME 04107
For pearl bracelet orders, please allow extra time for processing checks.
Badge
© 2012 Created by ALPHA MARKETING.
Powered by
You need to be a member of The Foundation for Children with Atypical HUS to add comments!
Join The Foundation for Children with Atypical HUS