The Foundation for Children with Atypical HUS

Sorry for the short remarks but cheryl will be out of recovery any minute, and Nathan within an an hour.

 

But the bottom line.......(and all of your with this disease will understand)...........NATHAN HAS produced Pee Pee. 

 

Wow, so simply but elegant words, right?     So thats the bottom line in all of this, right?   

 

I will issue something more "Director like"  shortly, but for now, time to savor this as a parent.

 

bill

 

 

 

UPDATE:;    a few numbers:

 

Creatinine:   2 hours after the transplant  4.6..........6 hours after transplant    1.6.....2 days after transplant.....  ,7

 

BUN:    One day ago     60.......      6 hours after translant   9.1   !!!.......2 days after transplant........21...a surprise

 

 

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Comment by lisa ann peterson on September 9, 2011 at 11:28pm
sooooooooo awsome i am so glad to hear your great news.. god bless your family
Comment by Gene Billingsley on September 6, 2011 at 10:57am

Bill what great and awesome news!!! We are soooo happy for you all and especially little Nathan!

 

I would joke that donating a kidney is like giving birth, but I think Cheryl's already got an idea about that! lol.

 

Take care and we'll keep up the prayers for you all.

 

Gene...

 

Comment by Joy Lewis O'Brien on September 3, 2011 at 8:07pm
Fantastic! Many congratulations and hope for a quick and easy recovery for both!
Comment by Kathy Yates on September 3, 2011 at 4:54pm
Congratulations, Congratulations!! Am so happy to hear that everything went well. Nathan's numbers are so awesome...What a wonderful change your lives are going to encounter.
Comment by Dana M Simone on September 3, 2011 at 10:44am

Tears of joy for Nathan - and the rest of the family....SO HAPPY!

Comment by Linda Burke on September 2, 2011 at 10:28pm
Looking forward to an update when you have time - hope all is well.
Comment by Kerri Grey on September 2, 2011 at 6:12pm
Such exciting amazing news!!!! Praying all stays well for you all xox
Comment by Jodi Kayler on September 1, 2011 at 11:56am
All I can say is "WOW!".
Comment by Jessica Olivia Frysz on September 1, 2011 at 10:59am
Very good to hear that Nathan and Cheryl are now into their recovery phase. Hope that everything stays where it is and stays positive!
Comment by Danna Vaughn on September 1, 2011 at 10:48am
Special prayers for you and your family! What a big, big day!

WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!

The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.

Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.


NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "aHUS Bootcamp" and "About aHUS" tabs at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.

************************

NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.

 

Did you know...

CFH (Serum Complement Factor H) is a regulatory protein. The secreted protein product of CFH consists of 20 repetitive units named "short consensus repeats" or SCRs (each approximately 60 amino acids). In patients with aHUS the last 5 "pearls" in the twenty pearl strand protein, SCR16 - SCR20, should bind to protect cells but do not- they are defective in one or more of the last 5 SCR locations. If they cannot bind or stick to the kidney to protect that tissue, the platelets clump into clots that affect the glomeruli of the kidney -potentially causing acute renal failure.
  
• • • • • • • • • • • •
  
It is estimated that there are about 300 cases of aHUS in the U.S., and it is most common with young children. The condition is life threatening and either can be chronic or can recur at intervals.
  
more factoids...

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Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

  

  
Or you can donate a specific dollar amount-every dollar will help the Foundation for Children with atypical HUS atypicalHUS.50megs.com


Donations may be made via credit card or Paypal. If you prefer, checks made payable to The Foundation for Children with Atypical HUS may be mailed to:
Atypical aHUS Foundation
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