A month ago I had an individaul come to me offering to donate a kidney transplant. Last night at the time of 8:38pm, I get a phone call with a laughing tone on the other end, telling me that he is going back to his ex to get married and that I am not to receive his kidney. This brought my hope level up and now I'm hurt, and have dealt with disappointment long enough. I'm ready to find a donor, or just accept a deceased kidney at this point, to be honest. It seems like as my hope goes up, my courage ends up going up, and then all of a sudden it's brought down again. Depression is not a good thing. I'm not crying over a selfish individual (even though I want to call him more than that, but am being discreet) . I feel that if you are going to offer an organ, you should follow through, but it's the idiots that don't understand this.
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Comment by Amy Swarbrick on March 11, 2010 at 12:20am
Comment by Cheryl Biermann on March 10, 2010 at 11:51am
Comment by Linda Burke on March 9, 2010 at 8:39pm WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
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