I hope I am posting this correctly. My 10 year old daughter was diagnosed this year with aHUS. She was released from hospital at the end of May. She is currently taking the bi-weekly dose of Soliris and her lab work looks good. However last week she was diagnosed with strep, even though she's on the small dosage of penicillin each day. The strep symptoms are almost gone, but she is complaining of chronic headaches. Is anyone else experiencing chronic headaches, and have you found anything to alleviate them?
Your input would be appreciated!