Hi everybody!
Just popping in to say hello. It's been whirlwind down here in New Orleans this last year. Sorry we missed Iowa - Aida and I would have loved to catch up again.
It was real nice visiting in CT - even if it was such a short time together.
Christian is doing real well - he has started Soliris as of Nov 2011 and is being worked up for transplant by Texas Children's.
Hope everyone is doing well and it's great to see so many stories of progress with this disease.
Take care,
Gene...
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Comment by Cheryl Biermann on January 6, 2012 at 11:00am -
Wonderful news about Christian! You won't believe the numbers with Soliris on board, we had a longer wait than most for the wonderful numbers but still got out in two weeks! Still can't wrap my head around it!
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